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- Validation of the content of a children’s game to promote the nursing professionPublication . Andrade, Luísa; Martins, MM; Fernandes, Carla Sílvia; Fernandes, IldaObjetivo: Validar conteúdo para um jogo experimental, designado por Quantos Queres, utilizando um origami, sobre a profissão de Enfermagem, para crianças dos 7 aos 12 anos. Método: Estudo metodológico, incluiu dois grupos de peritos: A (n=7), B (n=40). Amostragem não probabilística. Utilizado formulário de autopreenchimento, disponibilizado por e-mail e redes sociais, em Portugal, entre fevereiro e abril de 2020. Decisão de aceitação estabelecida para 75% de concordância. Resultados: Os grupos foram majoritariamente constituídos por enfermeiras. Grupo A identificou as temáticas: perfil profissional, formação, princípios éticos, elementos históricos e simbólicos e concebeu o conteúdo dos enunciados em forma de perguntas e respostas. No grupo B obteve-se a concordância superior a 75% nas áreas e nos conteúdos dos enunciados. Conclusão: A seleção do conteúdo a integrar o jogo é fundamental. A concordância obtida evidencia a importância dos temas eleitos e a adequação à finalidade que será testada posteriormente
- Happiness as a strength in the promotion of adolescent and adult young healthPublication . Fernandes, Ilda; Andrade, Luísa; Martins, MM; Rolim, Karla Maria Carneiro; Millions, Rejane Medeiros; Frota, Mirna Albuquerque; Albuquerque, Firmina Hermelinda Saldanhato assess the relation between sociodemographic characteristics of young people associated with the subjectivity of being happy; to evaluate the relationship between the subjectivity of being happy and the perception of health status; to evaluate the relationship between the subjectivity of being happy and the school and family environments and peer groups at school.
- Sentimentos de tristeza e desesperança em jovens portuguesesPublication . Millions, Rejane Medeiros; Fernandes, Ilda; Andrade, Luísa; Graça, Luís; Martins, MM; Rolim, KarlaIntroduction: Sadness as a basic of the human being emotion. It can be associated with the intrinsic of the younger’s characteristics and their context. It may manifest as discouragement, unwillingness to perform routine and social activities, low self-esteem or aloneness. Hopelessness arises when there is no sight of possibilities, confidence in others or future, enthusiasm for life being. That can inhibit the set goals and energy mobilization. These feelings may be signs of more complex problems, such as depressive disorders when associated with loss of interest or pleasure, changes in appetite, sleep and concentration and suicidal ideation thoughts. Aims: To identify the sadness and hopelessness feelings perceived by the younger´s and the associations between these feelings and demographic, educational and family characteristics. Method: Descriptive correlational study with 1377 Portuguese younger´s, which go into high school, aged 14-21 years, average age 17 years and mostly female. Was used the survey “Comportamentos de saúde, comportamentos de risco e envolvimento dos jovens com a escola e a família” Results: Sadness and hopelessness were not noticed by most younger´s. However, there is a higher risk in younger’s with negative school performance, who relate good relationship with colleagues, have never felt threatened by their colleagues, when they become involved with school and family and even if they are perceived the family as functional. Conclusions: Health professionals should identify early, value feelings of sadness and hopelessness in younger´s and have a transdisciplinary and inclusive practice in health education, in school and family contexts.
- Health education experiences with psychoactive substance usersPublication . Fernandes, Ilda; Pinheiro, Carlon Washington; Tavares, Sara Câmara; Rolim, Karla Maria Carneiro; Albuquerque, Firmina Hermelinda Saldanha; Andrade, Luísa; Millions, Rejane Medeiros
- Perfil sociodemográfico da depressão em idosos no Brasil : revisão integrativaPublication . Fernandes, Ilda; Neves, Fabrícia; Guimarães, Patrícia; Rolim, Karla Maria; Albuquerque, Firmina Hermelinda; Andrade, Luísa; Milliones, RejaneIntroduction: The prevalence of clinically significant depressive symptoms in the elderly is high. Therefore, it is essential that health professionals know the dominant profile of this nosological entity. Objectives: To identify in the literature, the sociodemographic profile of elderly people affected by depression between 2002 and 2016. Methods: Integrative literature review, carried out in the Latin American and Caribbean Health Sciences (LILACS) and Scientific Electronic Library Online (SciELO) databases, using the descriptors: depression, the elderly and geriatrics. Results: The prevalence of depressive illness significantly affects females (90%), aged over 60. The socio-demographic profile identifies white elderly, single, Catholic, illiterate, of medium economic level, with a family history. The use of illicit and licit drugs and a high rate of cognitive deficit are also prevalent characteristics in the profile of an elderly person with depression. Conclusions: Over the past few years, the elderly population has been showing an increase in mental illnesses, including depression. This, therefore, deserves more qualified and humanized attention by the health team, with the aim of reducing the rates of mental disorders in the elderly.
- Psychometric Properties of the Portuguese Version of the Iceland-Family Perceived Support Questionnaire in Parents of Children and Adolescents with Chronic ConditionPublication . Lemos, Sara; Andrade, Luísa; Barbieri-Figueiredo, MC; Martins, Teresa; Lima, LigiaAbstract: The support from nurses perceived by family members of children with chronic conditions has been shown to be a protective factor at different levels in a family’s health. As such, nurses need to have instruments that assess this perception to increase the quality of the care provided to those families. This methodological study aimed to analyze the psychometric properties of the Portuguese translation of the Iceland-Family Perceived Support Questionnaire (ICE-FPSQ) in parents of children/adolescents with chronic conditions. The ICE-FPSQ was administered to 237 parents recruited from the day hospital and outpatient services of four hospitals in Northern Portugal. Cronbach’s alpha reliability coefficients for the Total Scale, Cognitive Support, and Emotional Support subscales were excellent (α = 0.96, α = 0.93, α = 0.96, respectively). Reasonable fit indexes were found by confirmatory factor analysis (χ 2/df = 2.799; CFI = 0.960; PCFI = 0.791, and RMSEA = 0.087), indicating a good model fit to the original structure. The ICE-FPSQ is a valid and reliable instrument to measure perceived support.
- Tratamento com Perfusão Subcutânea Contínua de Insulina na adolescência – a perceção maternaPublication . Lima, Ligia; Silva, Rute; Andrade, LuísaEnquadramento: a Diabetes Mellitus tipo 1 é uma doença crónica que afeta maioritariamente crianças e jovens. No seu tratamento a insulinoterapia é essencial. A insulina pode ser administrada por Múltiplas Injeções Diárias (MID) ou por sistema de Perfusão Subcutânea Contínua de Insulina (PSCI). Este último tem vantagens, mas o processo de adaptação é exigente. Objetivo: conhecer a perceção das mães relativa ao sistema de PSCI no tratamento da DM1 dos adolescentes. Metodologia: estudo qualitativo descritivo e exploratório. A recolha de dados foi realizada por entrevista semiestruturada a 10 mães de adolescentes com DM1 com tratamento por PSCI. A análise foi realizada pelo método de análise de conteúdo de Bardin. Resultados: da análise das entrevistas emergiram quatro categorias: A transição para PSCI, Bem-estar do adolescente e família, Autonomia do adolescente e Limitações do dispositivo e respetivas subcategorias que expõem a perceção das mães de adolescentes com DM1 sobre tratamento com PSCI. Conclusão: o tratamento com PSCI proporciona melhor qualidade de vida ao adolescente e à sua família e favorece a autonomia dos adolescentes. O processo de adaptação coloca-lhes desafios sendo fulcral o suporte dos profissionais de saúde. Identificaram-se limitações no dispositivo que se desejam ultrapassadas atendendo à inovação tecnológica atual
- Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact modulePublication . Lima, Ligia; Lemos, Sara; Barbieri-Figueiredo, M. C.; Martins, Teresa; Andrade, LuísaPurpose This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. Design and Methods The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic disease and/or chronic disorder. Participants were recruited from the day hospital and/or outpatient services of four hospitals in Northern Portugal, the majority being mothers (87.3%) aged between 31 and 50 years (86.9%). The questionnaire was administered online through the REDCap platform. The hierarchical factor model of the Pediatric Quality of Life Inventory™ Family Impact Module proposed by Varni and colleagues was tested. Results Confirmatory Factor Analysis indicated good model fit, with the following indices (χ2/gL = 2.19; comparative fit index [CFI] = 0.90; root mean square error of approximation [RMSEA] = 0.07 immune cell [IC] 90% = 0.06−0.07). Internal consistency values were high (parent quality of life subtotal, α = .96; family functioning subtotal, α = .92; total score, α = .96). Practice Implications The European Portuguese version of the PedsQL™ FIM is a reliable and valid measurement tool for nurses to assess the impact of the child/adolescent chronic conditions on family's quality of life and to develop interventions to improve their well-being.
- Psychometric Properties of the Portuguese Version of the Iceland-Family Perceived Support Questionnaire in Parents of Children and Adolescents with Chronic ConditionPublication . Lemos, Sara; Andrade, Luísa; Barbieri-Figueiredo, M. C.; Martins, Teresa; Lima, LigiaThe support from nurses perceived by family members of children with chronic conditions has been shown to be a protective factor at different levels in a family’s health. As such, nurses need to have instruments that assess this perception to increase the quality of the care provided to those families. This methodological study aimed to analyze the psychometric properties of the Portuguese translation of the Iceland-Family Perceived Support Questionnaire (ICE-FPSQ) in parents of children/adolescents with chronic conditions. The ICE-FPSQ was administered to 237 parents recruited from the day hospital and outpatient services of four hospitals in Northern Portugal. Cronbach’s alpha reliability coefficients for the Total Scale, Cognitive Support, and Emotional Support subscales were excellent (α = 0.96, α = 0.93, α = 0.96, respectively). Reasonable fit indexes were found by confirmatory factor analysis (χ2/df = 2.799; CFI = 0.960; PCFI = 0.791, and RMSEA = 0.087), indicating a good model fit to the original structure. The ICE-FPSQ is a valid and reliable instrument to measure perceived support.
- Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemicPublication . Andrade, Luísa; Lemos, Sara Raquel Machado; Barbieri-Figueiredo, MC; Lima, LigiaPurpose: This study aimed to describe the perception of parents of children/adolescents with chronic conditions of their quality of life and family functioning during the COVID-19 pandemic and explore how the COVID-19 pandemic affected family management of children/adolescents' chronic conditions. Design and methods: A total of 237 parents of children/adolescents with chronic conditions participated in this cross-sectional study. Data were collected through an online questionnaire using the Paediatric Quality of Life Inventory™ Family Impact Module and an open-ended question about the impact of the pandemic on the family management of the paediatric chronic condition. Results: The Total Score of PedsQL™ FIM was slightly higher than the midpoint of the scale (M = 60.27; SD = 19.04), and the impact of the pandemic on the family's management of the chronic condition was perceived by 30% of parents as high or moderate. Statistically significant differences were found between parents who reported a high or moderate impact of the pandemic and those reporting little or no impact of the pandemic regarding parental quality of life and family functioning (t (233) = 8.13, p = .00, Cohen's d = 1.14). Two themes emerged from the analysis of the open-ended question: Impact on the child/adolescent and Impact on the family. Conclusions: Parents of children/adolescents with chronic conditions reported an average quality of life, and the COVID-19 pandemic significantly impacted the family management of chronic conditions. Practice implications: These results highlight the importance of developing interventions to support families in complex situations and contexts, targeting family functioning, family quality of life, and emotional management.