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Publication
Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemic
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Advisor(s)
Abstract(s)
Purpose: This study aimed to describe the perception of parents of children/adolescents with chronic conditions of their quality of life and family functioning during the COVID-19 pandemic and explore how the COVID-19 pandemic affected family management of children/adolescents' chronic conditions.
Design and methods: A total of 237 parents of children/adolescents with chronic conditions participated in this cross-sectional study. Data were collected through an online questionnaire using the Paediatric Quality of Life Inventory™ Family Impact Module and an open-ended question about the impact of the pandemic on the family management of the paediatric chronic condition.
Results: The Total Score of PedsQL™ FIM was slightly higher than the midpoint of the scale (M = 60.27; SD = 19.04), and the impact of the pandemic on the family's management of the chronic condition was perceived by 30% of parents as high or moderate. Statistically significant differences were found between parents who reported a high or moderate impact of the pandemic and those reporting little or no impact of the pandemic regarding parental quality of life and family functioning (t (233) = 8.13, p = .00, Cohen's d = 1.14). Two themes emerged from the analysis of the open-ended question: Impact on the child/adolescent and Impact on the family.
Conclusions: Parents of children/adolescents with chronic conditions reported an average quality of life, and the COVID-19 pandemic significantly impacted the family management of chronic conditions.
Practice implications: These results highlight the importance of developing interventions to support families in complex situations and contexts, targeting family functioning, family quality of life, and emotional management.
Description
Keywords
COVID-19 Chronic condition Child Family management Adolescent Quality of life
Citation
Andrade, L. M. C., Lemos, S. R. M., Barbieri-Figueiredo, M. D. C. A., & Lima, L. M. M. (2024). Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemic. Journal of pediatric nursing, 75, e34–e41. https://doi.org/10.1016/j.pedn.2023.12.023
Publisher
Elsevier