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Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemic

2024Journal article Restricted access
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dc.contributor.authorAndrade, Luísa
dc.contributor.authorLemos, Sara Raquel Machado
dc.contributor.authorBarbieri-Figueiredo, MC
dc.contributor.authorLima, Ligia
dc.date.accessioned2025-02-18T11:24:38Z
dc.date.available2025-02-18T11:24:38Z
dc.date.issued2024
dc.description.abstractPurpose: This study aimed to describe the perception of parents of children/adolescents with chronic conditions of their quality of life and family functioning during the COVID-19 pandemic and explore how the COVID-19 pandemic affected family management of children/adolescents' chronic conditions. Design and methods: A total of 237 parents of children/adolescents with chronic conditions participated in this cross-sectional study. Data were collected through an online questionnaire using the Paediatric Quality of Life Inventory™ Family Impact Module and an open-ended question about the impact of the pandemic on the family management of the paediatric chronic condition. Results: The Total Score of PedsQL™ FIM was slightly higher than the midpoint of the scale (M = 60.27; SD = 19.04), and the impact of the pandemic on the family's management of the chronic condition was perceived by 30% of parents as high or moderate. Statistically significant differences were found between parents who reported a high or moderate impact of the pandemic and those reporting little or no impact of the pandemic regarding parental quality of life and family functioning (t (233) = 8.13, p = .00, Cohen's d = 1.14). Two themes emerged from the analysis of the open-ended question: Impact on the child/adolescent and Impact on the family. Conclusions: Parents of children/adolescents with chronic conditions reported an average quality of life, and the COVID-19 pandemic significantly impacted the family management of chronic conditions. Practice implications: These results highlight the importance of developing interventions to support families in complex situations and contexts, targeting family functioning, family quality of life, and emotional management.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationAndrade, L. M. C., Lemos, S. R. M., Barbieri-Figueiredo, M. D. C. A., & Lima, L. M. M. (2024). Quality of life and family management of paediatric chronic condition amidst the COVID-19 pandemic. Journal of pediatric nursing, 75, e34–e41. https://doi.org/10.1016/j.pedn.2023.12.023pt_PT
dc.identifier.doi10.1016/j.pedn.2023.12.023pt_PT
dc.identifier.issn0882-5963
dc.identifier.urihttp://hdl.handle.net/10400.26/54441
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.relation.publisherversionhttps://www.sciencedirect.com/science/article/pii/S0882596323003834?via%3Dihubpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectCOVID-19pt_PT
dc.subjectChronic conditionpt_PT
dc.subjectChildpt_PT
dc.subjectFamily managementpt_PT
dc.subjectAdolescentpt_PT
dc.subjectQuality of lifept_PT
dc.titleQuality of life and family management of paediatric chronic condition amidst the COVID-19 pandemicpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPagee41pt_PT
oaire.citation.startPagee34pt_PT
oaire.citation.titleJournal of Pediatric Nursingpt_PT
oaire.citation.volume75pt_PT
person.familyNameAndrade
person.familyNameBarbieri-Figueiredo
person.familyNameLima
person.givenNameLuísa
person.givenNameMC
person.givenNameLigia
person.identifier.ciencia-idE716-4D62-A75A
person.identifier.ciencia-id7212-3EC5-34CE
person.identifier.ciencia-idFD10-26FF-19A1
person.identifier.orcid0000-0002-5715-855X
person.identifier.orcid0000-0003-0329-0325
person.identifier.orcid0000-0003-4556-0485
person.identifier.ridA-5019-2018
person.identifier.ridF-4264-2015
person.identifier.ridO-1347-2015
person.identifier.scopus-author-id39361079000
person.identifier.scopus-author-id55152017300
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationa782ad01-ae71-41ec-95a3-94d7621a3d2a
relation.isAuthorOfPublicationce37f804-c848-4341-88c9-928ddbcab1d1
relation.isAuthorOfPublicationacaf408a-a2bb-4a23-8afa-c6a8b9306f9d
relation.isAuthorOfPublication.latestForDiscoverya782ad01-ae71-41ec-95a3-94d7621a3d2a

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