Percorrer por autor "Domingos, Josefa"
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- Acceptability of a novel trampoline intervention in rehabilitation for Parkinson’s disease. Perceived barriers and facilitatorsPublication . Domingos, Josefa; Godinho, Catarina; Dean, John; Śmiłowska, Katarzyna; Melo, Filipe
- Adapted Portuguese folk dance intervention for subacute rehabilitation post-stroke : study protocolPublication . Fernandes, Júlio Belo; Domingos, Josefa; Família, Carlos; Veríssimo, Júlio; Castanheira, Patrícia; Menezes, Carla; Vicente, Célia; Santos, Cláudia; Marvão, Elisabete; Coelho, Joana; Mestre, Joana; Teodoro, Joana; Saraiva, Júlia; Cavaco, Marlene; Sousa, Natacha; Godinho, CatarinaDance can be an innovative, well-accepted, and effective therapy for stroke survivors. The present protocol aims to assess the feasibility of adapted Portuguese folk dance as a post stroke rehabilitative activity. We will use a mixed-methods pilot study convenience sampling to recruit 16 stroke survivors with mild–moderate lower limb paresis from a rehabilitation center in Lisbon and Tagus Valley. In addition to usual care, participants will attend 3 days per week 1-h dance exercise for 8 weeks. The dance style used for this intervention will be an adaptation of the Portuguese folk dance. Assessment will be conducted before and immediately after the program intervention. Acceptability will be assessed by four key domains (enrollment, retention, satisfaction, and recommendation to others). Safety will be assessed based on the number and type of adverse events. Feasibility will be assessed based on balance performance and functional mobility. Quantitative data will be analyzed through descriptive statistics for sample characterization, followed by inferential statistics to evaluate differences in the balance recovery and functional mobility scores between the initial and final assessment. Qualitative data will be analyzed using an inductive process of content analysis. The Portuguese folk dance program has the potential to improve balance outcomes and functional mobility. Our results will help validate Portuguese folk dance as a tool for rehabilitation settings for stroke survivors. The potential of our program to enhance balance outcomes and functional mobility among stroke survivors bears implications for aging and public health initiatives. Positive results from this study could pave the way for integrating dance-based rehabilitative activities into standard stroke rehabilitation protocols, catering to older stroke survivors’ specific needs and preferences.
- Addressing ageism : be active in aging: study protocolPublication . Fernandes, Júlio Belo; Ramos, Catarina; Domingos, Josefa; Castro, Cidália; Simões, Aida; Bernardes, Catarina; Fonseca, Jorge; Proença, Luís; Grunho, Miguel; Moleirinho-Alves, Paula; Simões, Sérgio; Sousa-Catita, Diogo; Vareta, Diana Alves; Godinho, CatarinaAgeism refers to stereotyping (how we think), prejudice (how we feel), and discrimination (how we act) against people based on their age. It is a serious public health issue that can negatively impact older people’s health and quality of life. The present protocol has several goals: (1) adapt the Ambivalent Ageism Scale for the general Portuguese population and healthcare professionals; (2) assess the factorial invariance of the questionnaire between general population vs. healthcare professionals; (3) evaluate the level of ageism and its predictors in the general population and evaluate the level of ageism and its predictors in healthcare professionals; (4) compare the levels of ageism between groups and the invariance between groups regarding the explanatory model of predictors of ageism. This quantitative, cross-sectional, descriptive, observational study will be developed in partnership with several Healthcare Professional Boards/Associations, National Geriatrics and Gerontology Associations, and the Universities of the Third Age Network Association. The web-based survey will be conducted on a convenience sample recruited via various social media and institutional channels. The survey consists of three questionnaires: (1) Demographic data; (2) Ambivalent Ageism Scale; (3) Palmore-Neri and Cachioni questionnaire. The methodology of this study will include translation, pilot testing, semantic adjustment, exploratory and confirmatory factor analysis, and multigroup analysis of the Ambivalent Ageism Scale. Data will be treated using International Business Machines Corporation (IBM®) Statistical Package for the Social Sciences (SPSS) software and Analysis of Moment Structures (AMOS). Descriptive analysis will be conducted to assess the level of ageism in the study sample. The ageism levels between the two groups will be compared using the t-student test, and two Structural Equation Modeling will be developed to evaluate the predictors of ageism. Assessing ageism is necessary to allow healthcare professionals and policymakers to design and implement strategies to solve or reduce this issue. Findings from this study will generate knowledge relevant to healthcare and medical courses along with anti-ageism education for the Portuguese population.
- Adherence to physical rehabilitation in patients with delirium post neurosurgery : a study protocolPublication . Fernandes, Júlio Belo; Monteiro, Leonor; Rodrigues, Cristina; Monteiro, Marlene; Gonçalves, Ana; Pinto, Mónica; Fernandes, Sónia; Romão, Ana; Domingos, Josefa; Godinho, CatarinaDelirium is an acute neurocognitive disorder characterized by confusion, disorientation, and fluctuating levels of arousal. It is commonly observed in patients following neurosurgery. This condition can lead to various adverse outcomes, including cognitive and functional decline, prolonged hospital stays, and increased mortality rates. Physical rehabilitation is crucial for these patients’ recovery, as it promotes functional improvement, reducing long-term disability risks, and enhancing overall quality of life. While evidence supports rehabilitation’s value in delirium management, there is limited understanding of specific strategies to improve adherence to rehabilitation among post-neurosurgery patients experiencing delirium. This study explores the rehabilitation workforce’s perspectives on strategies to enhance adherence to physical rehabilitation in neurosurgery patients with delirium. This study will use a qualitative, descriptive exploratory design to investigate strategies that support adherence to rehabilitation. We will use purposive sampling to recruit a diverse group of rehabilitation professionals, including nurses, physiatrists, physiotherapists, speech and language therapists, and occupational therapists, from Lisbon, Portugal. Data will be collected through semi-structured interviews guided by an interview script and analyzed using thematic analysis. Demographic data will be processed with SPSS software, while QDA Miner Lite will assist with coding and qualitative analysis. Identifying effective strategies to promote adherence to rehabilitation in neurosurgery patients affected by delirium could improve patient recovery, reduce healthcare burdens, and inform evidence-based guidelines. The findings of this study may provide practical insights for healthcare providers, administrators, and policymakers, ultimately supporting higher-quality care for this patient population.
- Applicability study of a multitask cognitive and motor exercise program for individuals with Parkinson´s disease: The COGWEB® MOVE ProgramPublication . Domingos, Josefa; Peralta, Diana; Loureiro, Rita; Godinho, Catarina; Pais, Joana; Cruz, Vitor Tedim; Ferreira, Joaquim J."Objective: To test the applicability of a new rehabilitation program for people with Parkinson´s disease combining web-based cognitive training with motor exercises (COGWEB ® CNS Move Program)."
- Barriers and strategies affecting the use of assistive devices for falls prevention among people with Parkinson’s disease : a qualitative pilot studyPublication . Fernandes, Júlio Belo; Domingos, Josefa; Fernandes, Sónia; Ferreira, Noélia; Almeida, Ana Silva; Chalaça, Ana; Sousa, Natacha; Santos, Isabel; Duarte, Andreia; Godinho, CatarinaBackground: As Parkinson’s disease (PD) progresses, patients experience difficulties with gait and balance, requiring assistive devices to ensure fall prevention and safety. Despite the advantages provided by these aids, many people with PD do not adhere to their use. Objective: This study aims to explore the barriers to using assistive devices among people with PD and identify strategies to improve their adherence. Methods: We used a qualitative, exploratory, and descriptive research design. Individual semi-structured interviews were conducted from October 2021 to July 2022, with participants selected through convenience sampling. Thematic analysis was performed to analyze data. Results: Nineteen participants were interviewed, with the majority being male (63.2%) and a mean age of 72.3. This research identified several barriers to using assistive devices that were grouped under six broad themes and 14 subthemes. These themes included disease symptoms, physical limitations associated with holding the device, stigma, symbolism of the device, level of involvement of health professionals, and environmental factors. Concerning the strategies to improve adherence, they were grouped into themes that reflect different priority settings in the health sector. At the macro level, participants emphasized the significance of community education and intergenerational contact. At the meso level, participants highlighted the need for support groups, as well as prescription and training provided by health professionals. Finally, at the micro level, participants emphasized the importance of tailored care and shared decision-making. Conclusion: This study’s findings offer insights on barriers and strategies reported by people with PD, improving assistive device utilization.
- Boxing with and without kicking techniques for people with Parkinson’s disease : an explorative pilot randomized controlled trialPublication . Domingos, Josefa; Lima, Ana Ligia Silva de; Steenbakkers-van der Pol, Tessa; Godinho, Catarina; Bloem, Bastiaan R.; de Vries, Nienke M.Background: People with Parkinson’s disease (PD) benefit from boxing exercise. Adding kicking variations to the boxing may provide additional benefit to improve balance. However, the benefits and adherence to such trainings is unknown. Objective: To explore the feasibility, safety, and benefits on balance of boxing training combined with kicking techniques in comparison to boxing without kicking in PD. Methods: Participants were randomized to group-based boxing training with kicking techniques (BK) or to group-based boxing alone training (BO). Both groups trained for one hour, once a week, for a period of 10 weeks. Participants were assessed at baseline and ten weeks post-intervention for difference in balance, fear of falling, balance confidence, walking ability, and quality of life. Results: Twenty-nine people with PD (median age 64 years; median disease duration 5 years) participated. Both interventions were feasible and acceptable for all participants. No adverse events occurred. Most participants (BK 80%; BO 75%) were satisfied with the training. We found no significant between group difference on either the primary (Mini-BEST) or secondary outcomes. The within group comparison showed that balance improved in both groups after the intervention (BK 22.60 (2.7) to 25.33 (2.64) p = 0.02; BO 23.09 (3.44) to 25.80 (2.39); p = 0.01 on the Mini BEST test). Conclusion: Both types of boxing seem to be feasible and safe. Adding kicking techniques to boxing does not improve balance significantly more than boxing alone. Incorporation of kicking may be a valuable addition to the exercise therapy repertoire.
- Burden and disutility of sleep disturbance and early morning OFF symptoms in people with advancing Parkinson’s disease : a vignette-based approach using the EQ-5D-5LPublication . Domingos, Josefa; Arija, Pablo; Malaty, Irene A.; Pahwa, Rajesh; Chaudhuri, K. Ray; Boeri, Marco; Kuharic, Maja; Lalla, Anjana; Baldwin, Zachary; Yan, Connie H.; Heisen, Marieke; Mohan, Divya; Penton, HannahBackground: Parkinson’s disease (PD) is characterized by motor and non-motor symptoms that fluctuate as oral medication wears off, causing periods when symptoms return (“OFF” time) and periods of control (“ON” time). These fluctuations often occur at night and early morning. Sleep disturbance (SD) and early-morning OFF time (EMO) have been shown to decrease health-related quality of life (HRQoL) in people with PD (PwP). However, limited evidence exists on how these symptoms impact health state utility values (HSUVs) used in economic modeling. This study aimed to estimate the burden and disutility of SD and EMO in PwP through vignettes valued using the EQ-5D-5 L. Methodology: An online survey was completed by adults (≥ 30 years) with self-reported PD diagnosis for ≥ 5 years and ≥ 2 h/day of OFF time, on oral PD medications, and residing in the US or UK. The survey included EQ-5D-5 L and EQ-VAS assessments for 4 vignettes—No SD or EMO, SD (without EMO), EMO (without SD), and Both SD and EMO—plus questions exploring the burden of SD and EMO. EQ-5D-5 L responses were converted into US utility values to estimate HSUVs and the disutility of SD and EMO. Results: Seventy-five individuals completed the survey; 52.00% were male, and 78.66% resided in the US. The average age was 64.32 years, with a mean time since diagnosis of 9.82 years and an average OFF time of 3.91 h/day. In the previous week, 96.00% and 98.67% of respondents reported experiencing SD and EMO, respectively. The presence of either SD (HSUV: 0.796) or EMO (HSUV: 0.701) alone resulted in lower EQ-5D-5 L utilities, with the presence of both valued least (HSUV: 0.528), compared with when both SD and EMO were absent (HSUV: 0.911). EQ-VAS scores ranged from 81.01 for no symptoms to 48.41 for both. Conclusions: SD and EMO impose a significant burden on PwP and decrease HSUVs. As SD and EMO were associated with significant disutility, they should be incorporated into economic models to comprehensively assess PD treatment benefits. Raising awareness among PwP and healthcare providers and prioritizing treatments that minimize SD and EMO can reduce their burden and improve HRQoL for PwP.
- Community exercise : a new tool for personalized Parkinson’s care or just an addition to formal care?Publication . Domingos, Josefa; Dean, John; Fernandes, Júlio Belo; Massano, João; Godinho, CatarinaPhysiotherapy and exercise are associated with motor and non-motor benefits in Parkinson’s disease (PD). Community exercise programs may increase ongoing exercise participation and help people with Parkinson’s disease actively participate in their health management. But there is still limited knowledge about these programs regarding their benefits, safety, implications over the long-term, and effective implementation. These questions could hold relevant clinical implications. In this perspective article, we identify the current challenges and reflect upon potential solutions to help community exercise to be implemented as an additional anchor to personalize management models for Parkinson’s disease.
- Controlo postural na Doença de Parkinson: alterações características em função dos diferentes estádios de evolução da doençaPublication . Godinho, Catarina; Ferret-Sena, Véronique; Brito, José; Dias, Margarida; Calado, Ana; Semedo, Cristina; Domingos, Josefa; Melo, Filipe