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- O papel dos cuidados continuados na reconstrução da autonomiaPublication . Araújo, F.; Bastos, Fernanda; Lourenço, Marisa; Vilela, Carlos; Fernandes, Carla Sílvia; Brito, Alice; Joana Campos, Maria
- Cuidados paliativos, conforto e espiritualidadePublication . Lourenço, Marisa; Encarnação, Paula; Lumini Landeiro, Maria José
- Intervenções no controlo da xerostomia na pessoa em situação paliativa – scoping reviewPublication . Cunha, Sara; Silva, Patrícia; Oliveira, Sandra; fernandes, olga; Lourenço, MarisaIntroduction:Xerostomia is the subjective sensation of dry mouth; itoccurs when less saliva is secreted than the amount of water lost through evaporation and absorption from the oral mucosa. It has multiple consequences for the general and oral health ofpeople in a palliative situation, and quality of life.Objective:Toexamine and map the interventions implemented to relieve xerostomia of the person in palliative situation.Methods:A scoping review was conducted following the Joanna Briggs Institute methodology. Data search was performed in the following databases: CINAHL COMPLETE®, PUBMED®, MEDLINE COMPLETE®, SCOPUS® and SciELO®.Results: A total of 707 articles were identified, and 19 were extracted for final analysis. This scoping review considered the studies focused on people with advanced and irreversible chronic disease, in a palliative situation and at the end of life, aged 18 years or more. Interventions for the control of xerostomia are: non-pharmacological, assessment of the oral cavity, acupuncture, saliva substitutes, saliva stimulants and oral hygiene education programmes; pharmacological parasympathomimetic: pilocarpine and bethanechol chloride.Conclusion: Xerostomia is a health condition that can cause social embarrassment and chronic discomfort, with a great impact on people's quality of life. Grouping the available evidence, within this theme, can help health professionals to incorporate it into care practice, contributing to the increase in the person’s quality of life and the relief of suffering
- Developing a Card Game for Assessment and Intervention in the Person and the Family in Palliative Care: “Pallium Game”Publication . Fernandes, Carla Sílvia; Vale, M. Belém; Magalhães, Bruno; Castro, João P.; Azevedo, Marta D.; Lourenço, MarisaAbstract: Communication between the multidisciplinary team, the person, and the family in palliative and end-of-life situations implies, in most situations, a high negative emotional burden. Therefore, innovative strategies are needed to reduce it. The goal of this study is to describe the various stages of development and validation of a collaborative card game for people in palliative care and their families. Phase one is an exploratory study, Phase two is a Delphi study, and Phase three is a multiple case study. Participants for phases 2 and 3 were recruited using a convenience sampling method. The results demonstrate in an organized and structured way the different phases required to build a collaborative card game. The use of the game was found to be useful and effective. Four categories emerged from the content analysis of the open-ended responses: usability, evaluation tool, communication and therapeutic relationship, and meaning when using the game. A collaborative game in palliative care helps to create a space for individuals and families to express feelings and experiences, meeting the myriad of physical, psychosocial, and spiritual needs. The “Pallium game” is a useful and impactful approach to discussing sensitive topics in palliative care.
- Psychometric properties of the attitudes assessment scale towards the recovering self-care processPublication . Lourenço, Marisa; Encarnação, Paula; Silva, Elisabete; Peixoto, Maria José; Martins, TeresaIntroduction: After a critical event, which has left the person dependent in self-care activities, their recovery is influenced by the emotions and attitudes that the person adopts. Objective: To develop an instrument that allows the assessment of attitudes and emotional factors with the greatest impact on recovery, of a person dependent on basic self-care activities. Methods: A methodological study that aims to describe the construction and study of the metric properties of the Attitudes Assessment Scale during the self-care recovery process. Data were collected at a hospital and two long-term care units, between October 2019 and December 2020, 118 people with dependence on basic self-care activities participated. Results: A four-dimensional structure with 37 items showed adequate psychometric characteristics of validity after an exploratory factorial analysis. The coefficient alpha of Cronbach varied between 0.84 and 0.96, suggesting a good internal consistency. Conclusion: Assessment of emotional disorders and attitudes of the person, with a deficit in self-care, during the recovery process, contributes to a more effective and integrated recognition and planning of care needs, ensuring higher quality and a more personalized care. The replicability and validation of this measure in other contexts, countries and cultures, can probably contribute to a more informed analysis of the attitudes of the person with dependence in the basic self-care activities, during the recovery process after a disabling event.
- The use of games by nurses in palliative care: a scoping reviewPublication . Lourenço, Marisa; Fernandes, Carla Sílvia; Vale, Maria Belém Rego CamposBackground: Nursing is at the forefront of palliative care. Games are an innovative strategy in palliative care training. Aims: This study aimed to examine the usefulness of games for nurses in palliative care. Methods: A scoping review was conducted using the following databases: CINAHL and PUBMED (which includes MEDLINE, PsycINFO, SCOPUS and SciELO). The steps outlined by the Joanna Briggs Institute were followed. Findings: Of the 685 articles initially identified, 17 were included for analysis. Games used were role-play (n=12), card games (n=1), digital games (n=1), board games (n=1), reflection games (n=1) and experimental games (n=1). Games were aimed at nurses (n=6) and nursing students (n= 1 1). Game advantages included: improved palliative care knowledge, increased communication skills, reduced negative emotions and increased multidisciplinary team skills. Conclusions: Effective and innovative pedagogical techniques are required training techniques for nurses and nursing students who provide palliative care, as they can reduce negative emotions such as fear, anguish and guilt.
- Exploring the use of games in palliative care: A scoping reviewPublication . Lourenço, Marisa; Fernandes, Carla Sílvia; Vale, Maria Belém Rego CamposObjective There has been increasing recognition of the potential of games in health; however, knowledge of their application in palliative care is lacking. Therefore, this study aimed to identify and map the available evidence on the use of games in palliative care, analyzing how research has been conducted on this topic and identifying gaps in knowledge. Method A scoping review was carried out. The literature search was conducted using the respective descriptors and search syntax appropriate to each of the databases searched. The review included all study types with no time limits. Results Of the 685 articles initially identified, 53 were included for final analysis. Several different game types were identified, with the majority of studies using role-play (n = 29) and card games (n = 17). The games analyzed were essentially aimed at empowering patients (n = 14), and in some cases, extended to families or caregivers, as well as to medical and nursing students. The analysis of the articles in this review resulted in two major themes: Role-playing for training in palliative care and card games to discuss end-of-life care. Significance of results Games allow space for the expression of emotions and promote creativity. They can be applied both in a training context, to enable health professionals to develop essential skills in palliative care, and for patients, families, and caregivers, allowing them to talk about serious things while playing.
- Challenges for palliative care in times of COVID-19: a scoping review protocolPublication . Lourenço, Marisa; Gomes, Tânia; Araujo, Fátima; Ventura, Filipa; Silva, RosaIntroduction: The COVID-19 Pandemic had a major impact on health personnel, families and the person receiving palliative and end-of-life care. Global measures to reduce contamination have forced a change in the practice. The fear of getting infected, restricted visits and the use of personal protective equipment challenged communication between the multidisciplinary team and the person and family in palliative and end-of-life care. The suffering of an end-of-life experience was compounded by long periods of loneliness. Synthesizing evidence from these experiences can inform decision-making and health policy for future global pandemics. Objectives: To map the experience of health personnel, the person and the family in palliative and end-of-life care, during the COVID-19 pandemic. Methods: This scope review will follow the JBI methodology for scoping reviews. Two independent reviewers will evaluate the articles and extract and synthesize the data. It will include studies published in Spanish, English and Portuguese, since March 2020. The following electronic databases will be searched: CINAHL Complete, MEDLINE, Scopus, SciELO, Psychology and Behavioral Sciences, MEDIClatina Cochrane Central Register of Controlled Trials and Access Scientific Repository, opened in Portugal. Results: This scoping review is expected to include studies that address the experience of health personnel, the person and the family in the context of palliative and end-of-life care during the COVID-19 pandemic. Conclusion: This scoping review will analyze and synthesize the available scientific evidence on the experiences of health personnel with people and families in palliative care during COVID-19. It can also be the basis for a systematic review and/or help identify gaps where it may be important to invest in the future. The protocol for this revision is registered with OSF under number OSFHOME-z6agy-v1.
- Diagnostic assessment of the comfort of palliative patients: scoping review protocolPublication . Pereira, Jorge Miguel; Castro, Maria Luísa; Duarte, Ivone; Lourenço, MarisaIntroduction: The competence to evaluate is essential in any profession in the health area. The concept of comfort is intrinsically linked to palliative care, being a concern shared by any health professional. These, when analyzing, must know what they are looking for and what they should expect to find. Objectives: To map how health professionals assess people's comfort in palliative and end-of-life situations. Methods: will follow the methodology proposed by the Johanna Briggs Institute (JBI) for scoping reviews. Considered studies in Spanish, English and Portuguese, without temporal definition. Databases to search: MEDLINE Complete, Academic Search Complete, CINAHL Complete and Mediclatina (EBSCOhost), Scopus and Web of Science Core Collection. For unpublished studies, the RCAAP (open access repository in Portugal) will be used. Two independent reviewers will evaluate the articles and extract the data using a specific tool created. In case of discrepancies, a third reviewer will be requested. Results: It is expected to map the data used by health professionals in assessing the comfort of people in palliative care. Conclusions: This review will make it possible to identify instruments used to collect data and what is the professional competence of the group that has in its practice the assessment of comfort. This can form the basis for a systematic review and/or help identify gaps where it may be important to invest in the future. This protocol was registered on the OSF platform with the DOI: 10.17605/OSF.IO/UF52X.