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- O papel dos cuidados continuados na reconstrução da autonomiaPublication . Araújo, F.; Bastos, Fernanda; Lourenço, Marisa; Vilela, Carlos; Fernandes, Carla Sílvia; Brito, Alice; Joana Campos, Maria
- Cuidados paliativos, conforto e espiritualidadePublication . Lourenço, Marisa; Encarnação, Paula; Lumini Landeiro, Maria José
- A capacidade para melhorar o autocuidado: fatores de influência no potencial de recuperação da pessoa dependentePublication . Lourenço, Marisa; Puga Machado, Paulo Alexandre; Araújo, F.; Lumini Landeiro, Maria José; Ferreira, Luis Miguel; Martins, Teresa; Encarnação, Paula
- Os cuidados continuados integrados: recurso para a pessoa dependente melhorar o autocuidadoPublication . Lourenço, Marisa; Sousa, P.
- Fatores determinantes para o autocuidado na doença crónica: uma revisão integrativaPublication . Lourenço, Marisa; Freire, R.M.A.; Pinto Martins Salazar Almeida, Berta Maria; Peixoto, Maria José; Rocha, Maria do Carmo; Encarnação, Paula
- Os cuidados continuados integrados : recurso para a pessoa dependente melhorar o autocuidadoPublication . Lourenço, Marisa; Sousa, P.
- Factores que condicionam a promoção da autonomia da pessoa dependente no autocuidadoPublication . Lourenço, Marisa; Sousa, P.O objectivo deste estudo foi identi"car os factores que condicionam a reconstrução da autonomia no autocuidado após um evento gerador de dependência. Os dados foram colhidos por intermédio de entrevistas semiestruturadas, em Outubro de 2010. Foram entrevistadas 13 pessoas no domicílio que já tinham estado internadas numa unidade de convalescença da rede nacional de cuidados continuados na área do grande Porto e que aceitaram participar voluntariamente no estudo, com idades compreendidas entre os 50 e os 75, sendo 8 do sexo feminino e 5 do sexo masculino. Os dados foram organizados através do Nvivo7 e analisados segundo o método de codi"cação descritos por Strauss e Corbin (1998, 2008). Tendo emergido como categorias de maior nível de abrangência: capacidade funcional; consciencialização; respostas do domínio psicológico à situação de dependência; falta de acesso à informação; conhecimento adquirido com experiencias anteriores; percepção da mudança/diferença; dor, pessoas signi"cativas; potencialidade do domicílio; processo patológico e intervenções dos prestadores de cuidados de saúde. A reconstrução da autonomia após um evento gerador de dependência é influenciada por factores intrínsecos e extrínsecos à pessoa, que podem ser facilitadores ou inibidores no processo de mudança.
- Intervenções no controlo da xerostomia na pessoa em situação paliativa – scoping reviewPublication . Cunha, Sara; Silva, Patrícia; Oliveira, Sandra; fernandes, olga; Lourenço, MarisaIntroduction:Xerostomia is the subjective sensation of dry mouth; itoccurs when less saliva is secreted than the amount of water lost through evaporation and absorption from the oral mucosa. It has multiple consequences for the general and oral health ofpeople in a palliative situation, and quality of life.Objective:Toexamine and map the interventions implemented to relieve xerostomia of the person in palliative situation.Methods:A scoping review was conducted following the Joanna Briggs Institute methodology. Data search was performed in the following databases: CINAHL COMPLETE®, PUBMED®, MEDLINE COMPLETE®, SCOPUS® and SciELO®.Results: A total of 707 articles were identified, and 19 were extracted for final analysis. This scoping review considered the studies focused on people with advanced and irreversible chronic disease, in a palliative situation and at the end of life, aged 18 years or more. Interventions for the control of xerostomia are: non-pharmacological, assessment of the oral cavity, acupuncture, saliva substitutes, saliva stimulants and oral hygiene education programmes; pharmacological parasympathomimetic: pilocarpine and bethanechol chloride.Conclusion: Xerostomia is a health condition that can cause social embarrassment and chronic discomfort, with a great impact on people's quality of life. Grouping the available evidence, within this theme, can help health professionals to incorporate it into care practice, contributing to the increase in the person’s quality of life and the relief of suffering
- Developing a Card Game for Assessment and Intervention in the Person and the Family in Palliative Care: “Pallium Game”Publication . Fernandes, Carla Sílvia; Vale, M. Belém; Magalhães, Bruno; Castro, João P.; Azevedo, Marta D.; Lourenço, MarisaAbstract: Communication between the multidisciplinary team, the person, and the family in palliative and end-of-life situations implies, in most situations, a high negative emotional burden. Therefore, innovative strategies are needed to reduce it. The goal of this study is to describe the various stages of development and validation of a collaborative card game for people in palliative care and their families. Phase one is an exploratory study, Phase two is a Delphi study, and Phase three is a multiple case study. Participants for phases 2 and 3 were recruited using a convenience sampling method. The results demonstrate in an organized and structured way the different phases required to build a collaborative card game. The use of the game was found to be useful and effective. Four categories emerged from the content analysis of the open-ended responses: usability, evaluation tool, communication and therapeutic relationship, and meaning when using the game. A collaborative game in palliative care helps to create a space for individuals and families to express feelings and experiences, meeting the myriad of physical, psychosocial, and spiritual needs. The “Pallium game” is a useful and impactful approach to discussing sensitive topics in palliative care.
- Psychometric properties of the attitudes assessment scale towards the recovering self-care processPublication . Lourenço, Marisa; Encarnação, Paula; Silva, Elisabete; Peixoto, Maria José; Martins, TeresaIntroduction: After a critical event, which has left the person dependent in self-care activities, their recovery is influenced by the emotions and attitudes that the person adopts. Objective: To develop an instrument that allows the assessment of attitudes and emotional factors with the greatest impact on recovery, of a person dependent on basic self-care activities. Methods: A methodological study that aims to describe the construction and study of the metric properties of the Attitudes Assessment Scale during the self-care recovery process. Data were collected at a hospital and two long-term care units, between October 2019 and December 2020, 118 people with dependence on basic self-care activities participated. Results: A four-dimensional structure with 37 items showed adequate psychometric characteristics of validity after an exploratory factorial analysis. The coefficient alpha of Cronbach varied between 0.84 and 0.96, suggesting a good internal consistency. Conclusion: Assessment of emotional disorders and attitudes of the person, with a deficit in self-care, during the recovery process, contributes to a more effective and integrated recognition and planning of care needs, ensuring higher quality and a more personalized care. The replicability and validation of this measure in other contexts, countries and cultures, can probably contribute to a more informed analysis of the attitudes of the person with dependence in the basic self-care activities, during the recovery process after a disabling event.