Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice

Reisinho, Maria da Conceição; Gomes, Bárbara

http://hdl.handle.net/10400.26/42059

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Authors

Reisinho, Maria da Conceição

Gomes, Bárbara

Abstract(s)

Purpose: Cystic fibrosis is a life-shortening genetic disease. It affects both patient and family with the nurse playing a key role in the monitoring process. This study sought to contribute to enhanced targeted health care to adolescentswith cystic fibrosis and their parents by understanding the experiences of livingwith cystic fibrosis. Based on Afaf Meleis' Transitions Theory (1986) nurses identify the transition experienced by the study participants, thus contributing to the quality of nursing interventions. Design and methods: Two qualitative research studies using data collected through semi-structured interviews were conducted. The Straussian Grounded Theory was applied. The snowball technique was used for recruitment, under the inclusion criteria: adolescents aged between 10 and 21 years; diagnosis of cystic fibrosis for more than one year; and parents of these adolescents. A final sample of 16 adolescents and 14 parents was obtained. Results: Nursing therapeutic interventions acted as a facilitator of the health/illness transition process. Nurses' intervention areaswere identified to empower adolescents and their parentswith targeted knowledge and abilities to cope with problems. After diagnosis, parents assumed a new role-playing. Conclusions: Adolescents with cystic fibrosis and their parents experience various transition phases. Nurses can better help identifying the onset, persistence and ending of harmful periods. Practice implications: Adolescents with cystic fibrosis and their parents experience various transition phases. Nursing therapeutic interventions are cardinal to the health/illness transition.

Keywords

Cystic fibrosis Parents Adolescence Nurse's role

URI

http://hdl.handle.net/10400.26/42059

Citation

Reisinho, M.D.C., Gomes, B. (2022). Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice. (2022) Journal of Pediatric Nursing, 64, pp. e130-e135.