Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice

Reisinho, Maria da Conceição; Gomes, Bárbara

Publication

Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice

2022Journal article

dc.contributor.author	Reisinho, Maria da Conceição
dc.contributor.author	Gomes, Bárbara
dc.date.accessioned	2022-10-26T15:12:45Z
dc.date.available	2022-10-26T15:12:45Z
dc.date.issued	2022
dc.description.abstract	Purpose: Cystic fibrosis is a life-shortening genetic disease. It affects both patient and family with the nurse playing a key role in the monitoring process. This study sought to contribute to enhanced targeted health care to adolescentswith cystic fibrosis and their parents by understanding the experiences of livingwith cystic fibrosis. Based on Afaf Meleis' Transitions Theory (1986) nurses identify the transition experienced by the study participants, thus contributing to the quality of nursing interventions. Design and methods: Two qualitative research studies using data collected through semi-structured interviews were conducted. The Straussian Grounded Theory was applied. The snowball technique was used for recruitment, under the inclusion criteria: adolescents aged between 10 and 21 years; diagnosis of cystic fibrosis for more than one year; and parents of these adolescents. A final sample of 16 adolescents and 14 parents was obtained. Results: Nursing therapeutic interventions acted as a facilitator of the health/illness transition process. Nurses' intervention areaswere identified to empower adolescents and their parentswith targeted knowledge and abilities to cope with problems. After diagnosis, parents assumed a new role-playing. Conclusions: Adolescents with cystic fibrosis and their parents experience various transition phases. Nurses can better help identifying the onset, persistence and ending of harmful periods. Practice implications: Adolescents with cystic fibrosis and their parents experience various transition phases. Nursing therapeutic interventions are cardinal to the health/illness transition.	pt_PT
dc.description.sponsorship	UIDB/4255/2020
dc.description.version	info:eu-repo/semantics/publishedVersion	pt_PT
dc.identifier.citation	Reisinho, M.D.C., Gomes, B. (2022). Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice. (2022) Journal of Pediatric Nursing, 64, pp. e130-e135.	pt_PT
dc.identifier.doi	10.1016/j.pedn.2021.12.007	pt_PT
dc.identifier.issn	0882-5963
dc.identifier.uri	http://hdl.handle.net/10400.26/42059
dc.language.iso	eng	pt_PT
dc.peerreviewed	yes	pt_PT
dc.publisher	Elsevier	pt_PT
dc.relation.publisherversion	https://www.sciencedirect.com/science/article/pii/S0882596321003754?via%3Dihub	pt_PT
dc.rights.uri	http://creativecommons.org/licenses/by/4.0/	pt_PT
dc.subject	Cystic fibrosis	pt_PT
dc.subject	Parents	pt_PT
dc.subject	Adolescence	pt_PT
dc.subject	Nurse's role	pt_PT
dc.title	Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice	pt_PT
dc.type	journal article
dspace.entity.type	Publication
oaire.citation.endPage	e135	pt_PT
oaire.citation.startPage	e130	pt_PT
oaire.citation.title	Journal of Pediatric Nursing	pt_PT
oaire.citation.volume	64	pt_PT
person.familyName	Reisinho
person.familyName	Gomes
person.givenName	Maria da Conceição
person.givenName	Bárbara
person.identifier.ciencia-id	A217-E4A6-9E44
person.identifier.orcid	0000-0003-3235-8819
person.identifier.orcid	0000-0001-9312-8051
rcaap.rights	restrictedAccess	pt_PT
rcaap.type	article	pt_PT
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relation.isAuthorOfPublication	f128c193-26be-40c3-a936-21799ec8ca05
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