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- Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practicePublication . Reisinho, Maria da Conceição; Gomes, BárbaraPurpose: Cystic fibrosis is a life-shortening genetic disease. It affects both patient and family with the nurse playing a key role in the monitoring process. This study sought to contribute to enhanced targeted health care to adolescentswith cystic fibrosis and their parents by understanding the experiences of livingwith cystic fibrosis. Based on Afaf Meleis' Transitions Theory (1986) nurses identify the transition experienced by the study participants, thus contributing to the quality of nursing interventions. Design and methods: Two qualitative research studies using data collected through semi-structured interviews were conducted. The Straussian Grounded Theory was applied. The snowball technique was used for recruitment, under the inclusion criteria: adolescents aged between 10 and 21 years; diagnosis of cystic fibrosis for more than one year; and parents of these adolescents. A final sample of 16 adolescents and 14 parents was obtained. Results: Nursing therapeutic interventions acted as a facilitator of the health/illness transition process. Nurses' intervention areaswere identified to empower adolescents and their parentswith targeted knowledge and abilities to cope with problems. After diagnosis, parents assumed a new role-playing. Conclusions: Adolescents with cystic fibrosis and their parents experience various transition phases. Nurses can better help identifying the onset, persistence and ending of harmful periods. Practice implications: Adolescents with cystic fibrosis and their parents experience various transition phases. Nursing therapeutic interventions are cardinal to the health/illness transition.
- Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature reviewPublication . Reisinho, Maria da Conceição; Gomes, BárbaraObjectives: to search for nursing interventions focused on the improvement of quality of life and promotion of self-care of adolescents suffering from the Cystic Fibrosis. Method: literature review. The inclusion criteria were: primary studies and studies with interventions developed by nurses in the adolescent population with Cystic Fibrosis, using Portuguese, Spanish, French and English with no time limit, and supported by the databases Scopus, Web of Science and CINAHL. The search expressions were: nursing AND care AND adolescent AND “Cystic Fibrosis” AND (“quality of life” OR “self-care”). Results: a total of 59 articles was retrieved; 8 matched the criteria chosen. Nursing interventions targeted at adolescents with Cystic Fibrosis and their family members were identified. These interventions were organized according to the nurses’ role, namely caregiver, coordinator, counsellor, researcher, trainer and care partner. Conclusions: nursing interventions targeted at following up the adolescent during the entire therapeutic process, involving the presence of parents/significant others, since both the adolescent and family have to be responsible for self-care. Healthcare professionals should be capable of identifying the specific needs of patients with chronic disease and their family, permitting a better understanding and adaptation to the health-disease transition process.
- Aceitação de um novo quotidiano: perspetivas dos pais de adolescentes com fibrose quísticaPublication . Reisinho, Maria da Conceição; Gomes, Bárbara
- Vivências dos adolescentes com fibrose quísticaPublication . Reisinho, Maria da Conceição; Gomes, Bárbara
- Projetos escolares e a cidadania: a adaptação da criança com fibrose quística ao ambiente escolarPublication . Reisinho, Maria da Conceição; Gomes, Bárbara