Repository logo
 

Search Results

Now showing 1 - 7 of 7
  • I Jornadas do Mestrado de Enfermagem de Saúde Infantil e Pediatria: Livro de resumos
    Publication . França, Ana Paula; Barbieri-Figueiredo, MC; Reis Santos, Margarida; Carvalho, António Luís; Pinto, Cândida; Lima, Ligia; Fernandes, Ilda; Cruz, Sandra; Sousa, Paula Cristina
  • Children with cancer nutrition at home
    Publication . Pires, Rita Alexandra; Reis Santos, Margarida; Pinto, Cândida
    The children nutrition is one of the problems that parents have to manage at home, after treatment of an oncological disease. Nutritional commitment may prolong episodes of neutropenia and compromise the e+ectiveness of treatments. The goals of this study were: to identify the needs of parents/caregivers in the management of children/adolescents nutrition with cancer undergoing chemotherapy treatment, at home; to characterize parental strategies in the management of children's nutrition at home, after chemotherapy. A qualitative, exploratory, descriptive and cross-sectional study was developed with eleven parents of children with cancer, who underwent chemotherapy treatment, after returning home. Data were collected through a semi-structured interview and analyzed according to Bardin. From the analysis of content emerged the domain The Life at Home and the category Nutrition. Home Life for parents of the child with cancer presents several challenges, particularly in nutritional management, in the face of reduced food intake and the new rules imposed by the neutropenic diet. Thus, parents resort to several strategies to manage this problem: recourse to new practices in food confectionery; changes in the diet of the whole family; insistence/verbal pressure; distraction; reward after negotiation; supply a varied and nutritious diet; questioning/ accepting the food preference; organic food. Despite appealing to the multiplicity of strategies, the subjects of this study require the need for more structured support so that at home, they can respond to the challenges they face in their daily lives.
  • Preparing the return home of the children with cancer
    Publication . Pires, Rita Alexandra; Reis Santos, Margarida; Pinto, Cândida
    Children with oncologic disease, between treatments, if there are no complications, return home until the next treatment. Planning the discharge is essential to promote a continuity of cares at home. An adequate preparation for discharge leads to a better management of collateral e+ects and to a minor risk of rehospitalisation. The goals of this study were: to identify the preparation for discharge performed to the parents / caregivers of children / adolescents with cancer submitted to chemotherapy; to identify the strategies of preparation for discharge. A qualitative, exploratory, descriptive and transversal study was developed. After the return home, 11 parents of children with cancer submitted to chemotherapy treatment, participated in the study. Data was collected using a semi-structured interview and its treatment made using content analyses, based on Bardin. From the data analyses emerged the domain The Return Home that aggregates the category Preparation for Discharge and its subcategories: Oral Information, Written Information, Comprehensibility of the Information and Information Content. The return home is simultaneously a desired and feared moment. Parents and children return to their environment, but face di
  • A alimentação da criança com cancro em casa
    Publication . Pires, Rita; Reis Santos, Margarida; Pinto, Cândida
  • Criança com cancro: apoio na gestão da doença
    Publication . Pires, Rita; Reis Santos, Margarida; Pinto, Cândida
  • Perceção dos pais sobre o futuro da criança com cancro
    Publication . Pires, Rita; Reis Santos, Margarida; Pinto, Cândida
    Cancer in the child affects the whole family, which experiences the uncertainty of the prognosis, projecting itself into an unpredictable future. Parents come to live with the disease, the treatments and their effects, in a sinuous path lined by the uncertainty of the next day. The aim was to identify parents’ perceptions regarding the future of children / adolescents with cancer undergoing chemotherapy. A qualitative, exploratory, descriptive and transversal study was developed. Eleven parents of children with cancer who underwent chemotherapy after their homecare were enrolled. Data were collected by semi-structured interview and analyzed according to Bardin. From the content analysis emerged the domain “Future Uncertain”, which integrates the category “Syndrome of Damocles” and the subcategories “Fear” and “Unpredictability of the Future”. Fear is a negative emotion experienced by parents of children with cancer, from the time of diagnosis and throughout the course of the disease. The unpredictability of the future is a constant in the life of parents, generating a continuous concern, so they resort to the strategy of thinking and living only in the present. However, uncertainty can catalyze psychological growth, leading them to value small moments, and to incorporate uncertainty as an integral part of life. Nurses must carry out interventions aimed at better management of uncertainty, as they help in the process of adaptation and management of stress. These interventions should lead to a “new normality” in family life, in which confrontation with adversity leads to a whole new meaning of existence.
  • Preparar o regresso a casa da criança com cancro
    Publication . Pires, Rita; Reis Santos, Margarida; Pinto, Cândida