Percorrer por autor "Lemos, Marina"
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- Illness perception in adolescents with inflammatory Bowel disease and association with distress and well-beingPublication . Silva, Vanessa; Lima, Ligia; Lemos, Marina
- Illness perceptions of adolescents with in'ammatory bowel disease and the association with distress and well-beingPublication . Silva, Vanessa; Lima, Ligia; Lemos, MarinaIn'ammatory Bowel Disease is one of the most common chronic diseases a*ecting children and adolescents. It requires a lifelong medical treatment, as well as the adoption of a healthy lifestyle. However, little is known about illness perceptions of adolescents su*ering from IBD and how they relate to well-being measures. Aims were 1) to describe illness perceptions, distress and well-being of adolescents with IBD; and 2) to associate illness perceptions with distress and well-being of adolescents with IBD. Thirty-six adolescents aged 12 to 18, diagnosed with IBD, answered the Brief Illness Perception Questionnaire and distress and well-being items from the Health Behaviour in School-aged Children questionnaire. Overall the disease is perceived as benign. The majority of adolescents show some concerns about the disease but they feel a reasonable self-control over their illness and strongly believe in the bene+ts of treatment. Globally, adolescents showed positive perceptions of their health status and of their life. However, tiredness, exhaustion and nervousness were referred as frequent symptoms. Signi+cant correlations showed that higher threatening perception of illness was associated with an increased frequency of physical symptoms, of tiredness and exhaustion, of depression and nervousness and with less satisfaction with life (rs ranging from .331 to .587). All descriptive and correlational results were signi+cantly stronger in adolescents with active disease compared to those in remission. Negative illness perceptions will likely trigger distress and malaise in adolescents with IBD. From the evaluation/comprehension of illness perceptions, it is possible to plan interventions to change negative perceptions and illness outcomes.
- The added value of narratives for understanding adolescent's experiences with diabetesPublication . Silva, Vanessa; Lima, Ligia; Lemos, Marina
- The added value of narratives in the understanding of adolescent’sPublication . Lima, Ligia; Silva, Vanessa; Lemos, MarinaEvidence shows that living with diabetes during adolescence is a challenging experience. Besides the disease and treatment implications, it is important to comprehend how young people make sense of and manage their illness. Illness perceptions have been associated with a range of physical and mental health outcomes in adolescents with chronic disease. In order to contribute to a better understanding of the adolescent’s experiences with diabetes, this study aimed at1 describing illness perceptions of young people with diabetes2; understanding whether and in what ways, an in-depth analysis of the adolescent’s narratives, o%ers additional insight into their experience of living with diabetes. Participants were 32 adolescents with diabetes, aged 12 to 18 years, who completed the Brief Illness Perception Questionnaire and wrote a text about “What it is like to have diabetes”. Narratives were analysed with thematic analysis and illustrate how adolescents experience their disease, and the strategies adopted by them to maintain a sense of normalcy. Signi*cant associations with the scores for illness perceptions were found, as for example, adolescents who reported a better understanding of their illness, evaluated the experience of having diabetes as less restrictive (r = -0,445; p = 0.011). The use of narratives proved very informative on the adolescent’s experiences with diabetes. For clinical interventions aimed to promote the adaptation of young people with diabetes, this study *ndings address the need to focus on normalizing their lives, and to promote more positive illness beliefs and coping strategies, to balance the restrictive impact that diabetes has on adolescent’s lives.
- The Psychological Adjustment of Children with Asthma: Study of Associated VariablesPublication . Lima, Ligia; Lemos, Marina; Guerra, MarinaAs part of a larger research project aimed to understand the impact of asthma in the psychological adjustment of children, this study focuses in the identification of factors associated with this process. The sample of this study consisted of 89 children, aged 8 to 12 with physician diagnosed asthma. To assess children’s adjustment, the Portuguese versions of the following instruments were used: School-age Temperament Inventory (McClowry, 1995) Schoolagers Coping Strategies Inventory (Ryan-Wenger, 1990); Pediatric Quality of Life Inventory – PedsQL (Varni, Seid & Kurtin, 2001); The Self-perception Profile for Children (Harter, 1985), Child Behavior Checklist (Achenbach,1991); Social Skills Rating System (Gresham & Elliot, 1990). The results revealed that negative reactivity predicts the level of anxiety/depression, task persistence and perceived coping efficacy predicts social skills and that self-esteem is a significant predictor of the perceived quality of life. A significant proportion of shared variance was also found what seems to confirm the existence of multi-determination in the process of adjustment. The main conclusion is that two dimensions of temperament (negative reactivity and task persistence), as well as perceived coping efficacy and self-esteem, play a significant role in influencing the psychological adjustment of children with asthma.