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Illness perceptions of adolescents with in'ammatory bowel disease and the association with distress and well-being
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Advisor(s)
Abstract(s)
In'ammatory Bowel Disease is one of the most common chronic diseases a*ecting
children and adolescents. It requires a lifelong medical treatment, as well as the
adoption of a healthy lifestyle. However, little is known about illness perceptions of
adolescents su*ering from IBD and how they relate to well-being measures. Aims
were 1) to describe illness perceptions, distress and well-being of adolescents with
IBD; and 2) to associate illness perceptions with distress and well-being of adolescents
with IBD.
Thirty-six adolescents aged 12 to 18, diagnosed with IBD, answered the Brief
Illness Perception Questionnaire and distress and well-being items from the Health
Behaviour in School-aged Children questionnaire.
Overall the disease is perceived as benign. The majority of adolescents show
some concerns about the disease but they feel a reasonable self-control over their
illness and strongly believe in the bene+ts of treatment. Globally, adolescents
showed positive perceptions of their health status and of their life. However, tiredness,
exhaustion and nervousness were referred as frequent symptoms. Signi+cant
correlations showed that higher threatening perception of illness was associated
with an increased frequency of physical symptoms, of tiredness and exhaustion,
of depression and nervousness and with less satisfaction with life (rs ranging from
.331 to .587). All descriptive and correlational results were signi+cantly stronger in
adolescents with active disease compared to those in remission.
Negative illness perceptions will likely trigger distress and malaise in adolescents
with IBD. From the evaluation/comprehension of illness perceptions, it is possible
to plan interventions to change negative perceptions and illness outcomes.
Description
Keywords
Inflammatory Bowel Disease Adolescents Illness Beliefs Distress
Citation
Silva V, Lima L, Lemos MS. Illness perceptions of adolescents with in'ammatory bowel disease and the association with distress and well-being. Suplemento Digital Rev ROL Enferm 2018; 41(11-12)