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Publication
A criação da primeira banda desenhada de um super-herói com Osteogénese Imperfeita aplicada como meio de sensibilização para o público jovem
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Abstract(s)
O presente projeto tem como objetivo criar uma identidade ou avatar para identificar, representar e informar sobre a condição da Osteogénese Imperfeita. O projeto terá inicialmente uma metodologia de investigação qualitativa e quantitativa, uma vez que se pretende estudar o historial da utilização da banda desenhada como forma de empatia, formação académica e promoção de temas, bem como estudar a ligação entre o ser humano e a arte sequencial para compreender a importância e o impacto do mesmo meio. O principal problema a resolver é o atual desconhecimento da doença Osteogénese Imperfeita, que leva à exclusão dos indivíduos com esta doença, provocando bulling, exclusão direta e indireta e sobreprotecção. Por fim, utilizando uma metodologia indutiva, observando a realidade de pessoas com a patologia no seio da associação APOI, Associação Portuguesa de Osteogénese Imperfeita, pretende-se criar uma linha narrativa que transmita os principais problemas sofridos pelos jovens entre os 11 e os 17 anos, implementando a utilização da banda desenhada como forma de aproximação aos jovens fora da patologia que tenham esta faixa etária, de modo a poderem empatizar com as pessoas com esta patologia.
This project aims to create an identity or avatar to identify, represent and inform about the condition of Osteogenesis Imperfecta. The project will initially have a qualitative and quantitative research methodology, since the aim is to study the history of the use of comics as a form of empathy, academic training and promotion of themes, as well as to study the link between human beings and sequential art in order to understand the importance and impact of the same medium. The main problem to be solved is the current lack of awareness of the disease Osteogenesis Imperfecta, which leads to the exclusion of individuals with this disease, causing bulling, direct and indirect exclusion and overprotection. Finally, using an inductive methodology, observing the reality of people with the condition within the APOI association, the Portuguese Association of Osteogenesis Imperfecta, the aim is to create a narrative line that conveys the main problems suffered by young people between the ages of 11 and 17, implementing the use of comics as a way of approaching young people outside the pathology who are in this age group, so that they can empathize with people with this condition.
This project aims to create an identity or avatar to identify, represent and inform about the condition of Osteogenesis Imperfecta. The project will initially have a qualitative and quantitative research methodology, since the aim is to study the history of the use of comics as a form of empathy, academic training and promotion of themes, as well as to study the link between human beings and sequential art in order to understand the importance and impact of the same medium. The main problem to be solved is the current lack of awareness of the disease Osteogenesis Imperfecta, which leads to the exclusion of individuals with this disease, causing bulling, direct and indirect exclusion and overprotection. Finally, using an inductive methodology, observing the reality of people with the condition within the APOI association, the Portuguese Association of Osteogenesis Imperfecta, the aim is to create a narrative line that conveys the main problems suffered by young people between the ages of 11 and 17, implementing the use of comics as a way of approaching young people outside the pathology who are in this age group, so that they can empathize with people with this condition.
Description
Keywords
Osteogénese Imperfeita Banda desenhada Graphic medicine Desenho de personagens Super-herói