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Aceitabilidade da intervenção ComVida: perspetivas dos sobreviventes de AVC, cuidadores informais e profissionais de saúde
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Introdução: O Acidente Vascular Cerebral (AVC) é uma das principais causas de morte e incapacidade em Portugal e no mundo, com elevado impacto socioeconómico. O aumento do número de sobreviventes exige intervenções de autogestão, que promovam autonomia e autoeficácia. O ComVida, adaptação do modelo Bridges ao contexto português, integra recursos híbridos para apoiar sobreviventes, cuidadores informais e profissionais de saúde. Objetivos: Avaliar a aceitabilidade da intervenção ComVida, incluindo os recursos: aplicação móvel e caderno, através das perceções dos sobreviventes de AVC, cuidadores informais e profissionais de saúde. Métodos: Foi realizado um estudo qualitativo multiperspetivo de análise temática reflexiva, que incluiu a realização de três grupos focais. A amostra incluiu quinze participantes: seis sobreviventes de AVC, três cuidadores informais e seis profissionais de saúde. Os grupos focais foram realizados em formato on-line, realizada a análise temática indutiva e posteriormente transcritos e codificados em temas. Resultados: Do processo de codificação, emergiram quatro temas principais: (1) O poder das narrativas dos pares, onde as histórias incluídas no caderno foram vistas como motivadoras; (2) O Poder de Decisão, no qual os sobreviventes valorizaram a autonomia na definição de metas, associada ao aumento da autoeficácia; (3) O contexto cultural e de reabilitação, no qual emergem os fatores que influenciam os sobreviventes durante o processo de reabilitação e (4) Perspetivas sobre o suporte digital, que foi considerada útil pelos participantes, embora tenham sido identificadas algumas barreiras relacionadas com a literacia em saúde dos utilizadores. Conclusão: A intervenção Comvida demonstrou ser aceitável para sobreviventes de AVC, cuidadores informais e profissionais de saúde. Os resultados reforçam a importância de intervenções de autogestão adaptadas ao contexto português.
Introduction: Stroke is one of the leading causes of death and disability in Portugal and worldwide, with a significant socioeconomic impact. The growing number of survivors requires self-management interventions that foster autonomy and self-efficacy. ComVida, an adaptation of the Bridges model to the portuguese context, integrates hybrid resources to support survivors, informal caregivers, and healthcare professionals. Objectives: To evaluate the acceptability of the ComVida intervention, including its resources, mobile application and workbook, through the perceptions of stroke survivors, informal caregivers, and healthcare professionals. Methods: A qualitative multi-perspective study using reflexive thematic analysis was conducted, which included three focus groups. The sample comprised fifteen participants: six stroke survivors, three informal caregivers, and six healthcare professionals. The focus groups were held online, and an inductive thematic analysis was performed. The sessions were subsequently transcribed and coded into themes. Results: From the coding process, four main themes emerged: (1) The power of peer narratives, where the stories included in the workbook were seen as motivating; (2) The Power of Decision, in which survivors valued autonomy in setting goals, associated with increased self-efficacy; (3) The cultural and rehabilitation context, in which factors that influence survivors during the rehabilitation process emerge; and (4) Perspectives on digital support, which was considered useful by participants, although some barriers related to users’ health literacy were identified. Conclusion: The ComVida intervention was acceptable to stroke survivors, informal caregivers, and healthcare professionals. The results reinforce the importance of self-management interventions adapted to the Portuguese context.
Introduction: Stroke is one of the leading causes of death and disability in Portugal and worldwide, with a significant socioeconomic impact. The growing number of survivors requires self-management interventions that foster autonomy and self-efficacy. ComVida, an adaptation of the Bridges model to the portuguese context, integrates hybrid resources to support survivors, informal caregivers, and healthcare professionals. Objectives: To evaluate the acceptability of the ComVida intervention, including its resources, mobile application and workbook, through the perceptions of stroke survivors, informal caregivers, and healthcare professionals. Methods: A qualitative multi-perspective study using reflexive thematic analysis was conducted, which included three focus groups. The sample comprised fifteen participants: six stroke survivors, three informal caregivers, and six healthcare professionals. The focus groups were held online, and an inductive thematic analysis was performed. The sessions were subsequently transcribed and coded into themes. Results: From the coding process, four main themes emerged: (1) The power of peer narratives, where the stories included in the workbook were seen as motivating; (2) The Power of Decision, in which survivors valued autonomy in setting goals, associated with increased self-efficacy; (3) The cultural and rehabilitation context, in which factors that influence survivors during the rehabilitation process emerge; and (4) Perspectives on digital support, which was considered useful by participants, although some barriers related to users’ health literacy were identified. Conclusion: The ComVida intervention was acceptable to stroke survivors, informal caregivers, and healthcare professionals. The results reinforce the importance of self-management interventions adapted to the Portuguese context.
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AVC Autogestão Investigação Qualitativa Aplicação Móvel Abordagem Híbrida Stroke Self-management Qualitative Research Mobile Application Hybrid Approach