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Cuidar da criança com paralisia cerebral e sua família: Intervenção do Enfermeiro Especialista em Saúde Infantil e Pediátrica
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Advisor(s)
Abstract(s)
Ao longo do meu percurso profissional vivenciei situações que suscitaram a
necessidade de aprofundar conhecimentos no âmbito do cuidar da criança com doença
crónica.
A doença crónica na criança, nomeadamente com paralisia cerebral, gera impacto
não só na vida da criança e dos pais, mas também na família alargada, desencadeando novas
formas de vida, preocupações, desafios e desânimo no seu quotidiano.
Esta nova experiência de olhar a vida constitui para as pessoas envolvidas,
especialmente as mais próximas da criança, um misto de emoções: dúvidas, medo e anseios
em relação ao futuro, exigindo uma atenção especial do Enfermeiro Especialista em Saúde
Infantil e Pediátrica.
O presente relatório tem como área temática “cuidar da criança com paralisia cerebral
e família: intervenção do Enfermeiro Especialista em Saúde Infantil e Pediátrica” e pretende
traduzir o percurso realizado ao longo das experiências de ensino clínico, explicitando os
objetivos definidos, as atividades desenvolvidas, bem como a aquisição e desenvolvimento
das competências comuns, específicas e de mestre do Enfermeiro Especialista em
Enfermagem de Saúde Infantil e Pediátrica, constituindo, assim, uma ferramenta decisiva na
avaliação da aprendizagem, apoiado numa metodologia descritiva crítico-reflexiva com a
finalidade de obtenção do grau de mestre. A escolha do tema partiu da minha experiência
profissional e vivência familiar.
Neste percurso foi desenvolvido um estudo de Revisão Integrativa da Literatura com
o objetivo de identificar na literatura científica o impacto da paralisia cerebral na criança e
na família a nível dos domínios físico, social e cognitivo/emocional, considerando-o
importante para a melhoria da qualidade dos cuidados prestados à criança e família.
O relatório está estruturado em quatro capítulos, o primeiro contempla o quadro
conceptual, o segundo aborda o desenvolvimento das competências do Enfermeiro
Especialista em Saúde Infantil e Pediátrica, o terceiro refere-se ao estudo de revisão
integrativa da literatura e no quarto apresenta-se uma proposta de intervenção para a prática
clínica.
Este trabalho constitui um contributo essencial para a prestação de cuidados
especializados à criança, jovem e família, para a melhoria do meu desempenho profissional
e continuidade da formação.
Throughout my professional career I have experienced situations that raised the need to deepen knowledge in the field of caring for children with chronic illnesses. Chronic illness in children, namely cerebral palsy, impacts not only the lives of the child and parents, but also the extended family, triggering new ways of living, worries, challenges and discouragement in their daily lives. This new experience of looking at life constitutes a mix of emotions for the people involved, especially those closest to the child: doubts, fear and anxieties about the future, requiring special attention from the Nurse Specialist in Child and Pediatric Health. This report has as its thematic area “caring for children with cerebral palsy and family: intervention of the Nurse Specialist in Child and Pediatric Health” and intends to translate the path taken throughout the clinical teaching experiences, explaining the defined objectives, the activities developed, as well as the acquisition and development of common, specific and master's skills of the Nurse Specialist in Child and Pediatric Health Nursing, thus constituting a decisive tool in the assessment of learning, supported by a critical reflexive descriptive methodology with the purpose obtaining a master's degree. The choice of the theme came from my professional experience and family experience. Along this path, an Integrative Literature Review study was developed with the aim of identifying in scientific literature the impact of cerebral palsy on children and families in terms of physical, social and cognitive/emotional domains, considering it important for improving quality care provided to children and families. The report is structured into four chapters, the first covers the conceptual framework, the second addresses the development of specialist nurse skills in child and pediatric health, the third refers to the integrative literature review study and the fourth presents a intervention proposal for clinical practice. This work constitutes an essential contribution to the provision of specialized care for children, young people and families, to improve my professional performance and continuity of training.
Throughout my professional career I have experienced situations that raised the need to deepen knowledge in the field of caring for children with chronic illnesses. Chronic illness in children, namely cerebral palsy, impacts not only the lives of the child and parents, but also the extended family, triggering new ways of living, worries, challenges and discouragement in their daily lives. This new experience of looking at life constitutes a mix of emotions for the people involved, especially those closest to the child: doubts, fear and anxieties about the future, requiring special attention from the Nurse Specialist in Child and Pediatric Health. This report has as its thematic area “caring for children with cerebral palsy and family: intervention of the Nurse Specialist in Child and Pediatric Health” and intends to translate the path taken throughout the clinical teaching experiences, explaining the defined objectives, the activities developed, as well as the acquisition and development of common, specific and master's skills of the Nurse Specialist in Child and Pediatric Health Nursing, thus constituting a decisive tool in the assessment of learning, supported by a critical reflexive descriptive methodology with the purpose obtaining a master's degree. The choice of the theme came from my professional experience and family experience. Along this path, an Integrative Literature Review study was developed with the aim of identifying in scientific literature the impact of cerebral palsy on children and families in terms of physical, social and cognitive/emotional domains, considering it important for improving quality care provided to children and families. The report is structured into four chapters, the first covers the conceptual framework, the second addresses the development of specialist nurse skills in child and pediatric health, the third refers to the integrative literature review study and the fourth presents a intervention proposal for clinical practice. This work constitutes an essential contribution to the provision of specialized care for children, young people and families, to improve my professional performance and continuity of training.
Description
Keywords
Paralisia Cerebral Enfermeiro Família Criança.
Pedagogical Context
Citation
Publisher
CC License
Without CC licence