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Famílias de crianças com perturbações do desenvolvimento. Importância das Redes Formais
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| 1.35 MB | Adobe PDF |
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Advisor(s)
Abstract(s)
Este estudo tem como tema Famílias de Crianças com Perturbações do
Desenvolvimento, a importância das redes formais. As famílias de pessoas com
Perturbações do Desenvolvimento vivenciam diariamente dificuldades que se agravam
quando não existem os apoios necessários.
Os motivos que nos levaram a escolher este tema prendem-se com a importância que
atribuímos a uma boa rede de suporte para as famílias com pessoas com PD, de forma a
melhorar a sua qualidade de vida.
Durante a realização deste estudo houve a necessidade de se conhecer a realidade de
algumas famílias que têm no seu seio pessoas com Perturbação do Desenvolvimento.
Pretendemos, também, conhecer a realidade educativa para compreendermos o
funcionamento das atividades letivas.
Crockenberg e Litman (1991) referem a importância do fator rede social, também
denominada de rede de apoio, como minimizadora dos fatores de risco sentidos pelas
famílias, vendo-a também como uma mais-valia das oportunidades dadas à criança.
Os objetivos deste estudo são:
- Conhecer as dificuldades sentidas pelas famílias com pessoas com Perturbações no
Desenvolvimento;
- Conhecer as redes de apoio de cada família;
- Conhecer as redes de apoio formal presentes na comunidade local;
- Reconhecer a importância das redes formais na vida das famílias com pessoas com
Perturbações do Desenvolvimento;
Neste trabalho desenvolvemos uma abordagem qualitativa com entrevistas
semiestruturadas e pesquisa bibliográfica. As entrevistas foram feitas a seis famílias
com pessoas com PD, a uma Professora Coordenadora do Centro de Apoio, ao
Presidente da Câmara, à Vereadora da Ação Social, ao Vereador dos Pelouros e
Urbanismo e ao Representante do núcleo do Alto Alentejo da Associação “Pais em
Rede”.
Os resultados apontam para a necessidade da criação de redes de apoio formal para as
famílias com pessoas com PD, uma vez que não existe resposta na comunidade local
para as necessidades sentidas pelas famílias. As famílias entrevistadas apesar de terem
mostrado alguma fragilidade com o tema abordado, estão dispostas a colaborarem para
que os (as) seus (suas) filhos(as) tenham as mesmas oportunidades que as restantes
crianças.
This study has as its theme Families of children with Developmental Disorders, the importance of formal networks. Families of people with Developmental Disorders experience daily difficulties that worsen when the necessary support is not available. The reasons that led us to choose this topic were the importance of having a good support network in families with people with PD at all levels and the importance of improving the families' quality of life. During this study, there was a need to know the reality of some families that have people with Developmental Disorders in their midst. Crockenberg and Litman (1991) refer to the importance of the social network factor, also called support network, as a minimization of risk factors felt by families, also seeing it as an added value of the opportunities given to the child. The objectives of this study are: - To know the difficulties experienced by families with people with Developmental Disorders; - To know the support networks of each family; - To know the formal support networks, present in the local community; - To recognize the importance of formal networks in the lives of families with people with Developmental Disorders. In this work we developed a qualitative approach with semi-structured interviews and bibliographic research. The interviews were carried out with six families with people with PD, the Coordinating Professor of the Support Center, the Mayor, the Councilor or Social Action, the Councilor for Urbanism and the Representative of the Alto Alentejo nucleus of the Association “Network of Parents". The results point to the need to create formal support networks for families with people with PD, since there is no response in the local community to the needs felt by families. The interviewed families, despite having shown some fragility with the topic addressed, are willing to collaborate so that their children have the same opportunities as the other children.
This study has as its theme Families of children with Developmental Disorders, the importance of formal networks. Families of people with Developmental Disorders experience daily difficulties that worsen when the necessary support is not available. The reasons that led us to choose this topic were the importance of having a good support network in families with people with PD at all levels and the importance of improving the families' quality of life. During this study, there was a need to know the reality of some families that have people with Developmental Disorders in their midst. Crockenberg and Litman (1991) refer to the importance of the social network factor, also called support network, as a minimization of risk factors felt by families, also seeing it as an added value of the opportunities given to the child. The objectives of this study are: - To know the difficulties experienced by families with people with Developmental Disorders; - To know the support networks of each family; - To know the formal support networks, present in the local community; - To recognize the importance of formal networks in the lives of families with people with Developmental Disorders. In this work we developed a qualitative approach with semi-structured interviews and bibliographic research. The interviews were carried out with six families with people with PD, the Coordinating Professor of the Support Center, the Mayor, the Councilor or Social Action, the Councilor for Urbanism and the Representative of the Alto Alentejo nucleus of the Association “Network of Parents". The results point to the need to create formal support networks for families with people with PD, since there is no response in the local community to the needs felt by families. The interviewed families, despite having shown some fragility with the topic addressed, are willing to collaborate so that their children have the same opportunities as the other children.
Description
Keywords
Redes de Apoio Formal Perturbação do Desenvolvimento Inclusão Família Comunidade Formal Support Networks Developmental Disturbance Inclusion Family Community