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Needs and expectations of family caregivers of cancer patients in palliative care : a study protocol

datacite.subject.fosCiências Médicas::Ciências da Saúde
datacite.subject.sdg03:Saúde de Qualidade
dc.contributor.authorFernandes, Júlio Belo
dc.contributor.authorDomingos, Josefa
dc.contributor.authorCastro, Cidália
dc.contributor.authorSimões, Aida
dc.contributor.authorFernandes, Sónia
dc.contributor.authorAlmeida, Ana Silva
dc.contributor.authorBernardes, Catarina
dc.contributor.authorMiranda, Luís
dc.contributor.authorRisso, Sandra
dc.contributor.authorFerreira, Rogério
dc.contributor.authorBaixinho, Cristina Lavareda
dc.contributor.authorSilvestre, Milene
dc.contributor.authorGodinho, Catarina
dc.date.accessioned2026-03-09T09:07:40Z
dc.date.available2026-03-09T09:07:40Z
dc.date.issued2023-01
dc.description.abstractCancer has an associated burden that continues to grow, affecting patients, family caregivers, and the individual’s community. The family caregivers’ unmet needs may harmfully jeopardize their well-being and the patient’s health outcomes. Therefore, it is essential to understand the needs and expectations of family caregivers of cancer patients to develop and improve care practices. The present study aims to explore the needs and expectations of family caregivers of cancer patients in palliative care. This qualitative, descriptive exploratory study will use purposive sampling to recruit family caregivers and healthcare professionals from the palliative care units of two hospital centers in Lisbon and Tagus Valley. First, the Focus group will be performed until data saturation occurs. Then, a conventional thematic analysis will be applied to analyze data with the help of the coding software QDA Miner Lite database. This study’s findings will help identify gaps in care and provide data that can support healthcare professionals in providing evidence-based centered care to family caregivers. It can also generate knowledge that may help stakeholders to develop a comprehensive support system for cancer survivors in palliative care and their family caregivers.eng
dc.identifier.citationFernandes JB, Domingos J, Castro C, Simões A, Fernandes S, Almeida AS, Bernardes C, Miranda L, Risso S, Ferreira R, Baixinho CL, Silvestre M and Godinho C (2023) Needs and expectations of family caregivers of cancer patients in palliative care: A study protocol. Front. Psychol. 13:1071711. doi: 10.3389/fpsyg.2022.1071711
dc.identifier.doi10.3389/fpsyg.2022.1071711
dc.identifier.issn1664-1078
dc.identifier.urihttp://hdl.handle.net/10400.26/62028
dc.language.isoeng
dc.peerreviewedyes
dc.publisherFrontiers Media
dc.relation.hasversionhttps://doi.org/10.3389/fpsyg.2022.1071711
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectcancer survivors
dc.subjectpalliative care
dc.subjectcaregivers
dc.subjectfamily
dc.subjectneed assessment
dc.subjectexpectations
dc.titleNeeds and expectations of family caregivers of cancer patients in palliative care : a study protocoleng
dc.typecontribution to journal
dspace.entity.typePublication
oaire.citation.startPage1071711
oaire.citation.titleFrontiers in Psychology
oaire.citation.volume13
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85

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