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Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey

2024Artigo científico Open access
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dc.contributor.authorJuge, Pierre-Antoine
dc.contributor.authorKragstrup, Tue Wenzel
dc.contributor.authorPerez-Garcia, Luis Fernando
dc.contributor.authorFrãzao-Mateus, Elsa
dc.contributor.authorMakri, Souzi
dc.contributor.authorBoyd, Peter
dc.contributor.authorPrimdahl, Jette
dc.contributor.authorFerreira, Ricardo J. O.
dc.contributor.authorVlieland, Theodora P.M. Vliet
dc.contributor.authorNdosi, Mwidimi
dc.contributor.authorKiltz, Uta
dc.contributor.authorLandewé, Robert
dc.contributor.authorLauper, Kim
dc.contributor.authorde Hooge, Manouk
dc.date.accessioned2025-03-31T11:12:13Z
dc.date.available2025-03-31T11:12:13Z
dc.date.issued2024
dc.description.abstractObjective: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members). Methods: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions. Results: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%). Conclusion: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.eng
dc.identifier.citationJuge, P. A., Kragstrup, T. W., Perez-Garcia, L. F., Frãzao-Mateus, E., Makri, S., Boyd, P., Primdahl, J., Ferreira, R. J. O., Vliet Vlieland, T. P. M., Ndosi, M., Kiltz, U., Landewé, R., Lauper, K., & de Hooge, M. (2024). Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey. RMD open, 10(2), e004177. https://doi.org/10.1136/rmdopen-2024-004177
dc.identifier.doi10.1136/rmdopen-2024-004177
dc.identifier.issn2056-5933
dc.identifier.urihttp://hdl.handle.net/10400.26/57502
dc.language.isoeng
dc.peerreviewedyes
dc.publisherBMJ Publishing Group
dc.relation.hasversionhttps://rmdopen.bmj.com/content/10/2/e004177.long
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/
dc.subjectHealth services research
dc.subjectPatient care team
dc.subjectQualitative research
dc.titleEvaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international surveyeng
dc.typeArtigo científico
dspace.entity.typePublication
oaire.citation.issue2
oaire.citation.startPagee004177
oaire.citation.titleRMD Open: Rheumatic and Musculoskeletal Diseases
oaire.citation.volume10
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85

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