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Perfil do cuidador informal principal da pessoa adulta com acidente vascular cerebral em Portugal com mais de 6 meses de experiência
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| 1.11 MB | Adobe PDF |
Advisor(s)
Abstract(s)
Introdução: Cuidadores informais principais de pessoas adultas com Acidente Vascular
Cerebral podem sofrer alterações ao nível fisiológico, psicológico, social e económico,
relacionadas com o processo de recuperação da pessoa cuidada. Ao longo do tempo estima-
se que a idade, comorbilidades , qualidade de vida do cuidador, o nível de dependência da
pessoa cuidada podem aumentar a sobrecarga. Em Portugal não existem dados sobre estes
cuidadores a longo prazo, sendo o objetivo deste estudo caracterizar o seu perfil.
Metodologia: Efetuou-se um estudo observacional transversal, integrando uma amostra de
cuidadores informais principais com mais de 6 meses com recolha de dados através de um
questionário sociodemográfico e de caracterização dos cuidados prestados, de avaliação da
qualidade de vida (WHOQOL-Bref) sobrecarga (QASCI)), auto-eficácia (GSE), e nível
autoreportado de autonomia da pessoa cuidada (mRS). Para a análise de dados utilizou-se
estatística descritiva e inferencial.
Resultados: A amostra foi de 50 participantes (média de idade=58,92), predominantemente
do sexo feminino (78%), dos quais 23,9% tiveram de modificar o seu trabalho e
despenderam em média 10,68 horas por dia na prestação de cuidados. Resultados
demonstraram níveis de qualidade de vida e autoeficácia satisfatórios (79,96 e 29,46
respetivamente), na sobrecarga revelaram-se ligeiramente elevados (81,08), estes últimos
associados à alteração da profissão, prestação de maior número de cuidados, mais horas por
dia, mais produtos de apoio e ter mais do que uma pessoa a cargo. A QV dos cuidadores
demonstrou estar negativamente associada aos níveis de sobrecarga e positivamente
associada à sua autoeficácia.
Conclusão: De acordo com os resultados obtidos as equipas multidisciplinares devem
efetuar uma avaliação da díade cuidador-pessoa cuidada, trabalhar em colaboração com o
cuidador, ajudando-os a lidar com os problemas existentes durante os longos períodos de
cuidados, reforçar medidas que permitam aumentar os níveis de autoeficácia dos cuidadores,
atendendo a indicadores de QV, sobrecarga e autoeficácia.
Introduction: Informal caregivers of adults with stroke may suffer changes at the physiological, psychological, social and economic levels, related to the recovery process of the person being cared for. Over time, it is estimated that the age, comorbidities and quality of life of the caregiver, the level of dependence of the person being cared for may increase the burden. In Portugal, there are no data on these long-term caregivers, and the aim of this study is to characterize their profile. Methodology: A cross-sectional observational study was carried out, integrating a sample of primary informal caregivers older than 6 months, with data collection through a sociodemographic questionnaire and characterization of the care provided, assessment of quality of life (WHOQOL-Bref), self-efficacy (GSE ), self-efficacy (GSE), and self- reported level of autonomy of the person being cared for (mRS). Descriptive and inferential statistics were used for data analysis. Results: The sample consisted of 50 participants (mean age=58.92), predominantly female (78%), of whom 22% had to modify their work and spent an average of 10.68 hours per day in care. Results showed satisfactory levels of quality of life and self-efficacy (79.96 and 29.46 respectively), in the burden were slightly high (81.08), the latter associated with the change in profession, provision of more care, more hours per day, more supporting products and having more than one person in charge. Caregivers' QoL has been shown to be negatively associated with burden levels and positively associated with their self-efficacy. Conclusion: According to the results obtained, multidisciplinary teams should carry out an assessment of the caregiver-person dyad, work in collaboration with the caregiver, helping them to deal with the problems that exist during the long periods of care, reinforce measures that allow increasing the levels of self-efficacy of caregivers, taking into account indicators of QoL, burden and self-efficacy.
Introduction: Informal caregivers of adults with stroke may suffer changes at the physiological, psychological, social and economic levels, related to the recovery process of the person being cared for. Over time, it is estimated that the age, comorbidities and quality of life of the caregiver, the level of dependence of the person being cared for may increase the burden. In Portugal, there are no data on these long-term caregivers, and the aim of this study is to characterize their profile. Methodology: A cross-sectional observational study was carried out, integrating a sample of primary informal caregivers older than 6 months, with data collection through a sociodemographic questionnaire and characterization of the care provided, assessment of quality of life (WHOQOL-Bref), self-efficacy (GSE ), self-efficacy (GSE), and self- reported level of autonomy of the person being cared for (mRS). Descriptive and inferential statistics were used for data analysis. Results: The sample consisted of 50 participants (mean age=58.92), predominantly female (78%), of whom 22% had to modify their work and spent an average of 10.68 hours per day in care. Results showed satisfactory levels of quality of life and self-efficacy (79.96 and 29.46 respectively), in the burden were slightly high (81.08), the latter associated with the change in profession, provision of more care, more hours per day, more supporting products and having more than one person in charge. Caregivers' QoL has been shown to be negatively associated with burden levels and positively associated with their self-efficacy. Conclusion: According to the results obtained, multidisciplinary teams should carry out an assessment of the caregiver-person dyad, work in collaboration with the caregiver, helping them to deal with the problems that exist during the long periods of care, reinforce measures that allow increasing the levels of self-efficacy of caregivers, taking into account indicators of QoL, burden and self-efficacy.
Description
Keywords
Acidente Vascular Cerebral Cuidador Informal Principal Qualidade de vida Autoeficácia Sobrecarga emocional Stroke Primary Informal Caregiver Quality of Life Self-Efficacy Emotional Overload