Percorrer por autor "Dean, John"
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- Acceptability of a novel trampoline intervention in rehabilitation for Parkinson’s disease. Perceived barriers and facilitatorsPublication . Domingos, Josefa; Godinho, Catarina; Dean, John; Śmiłowska, Katarzyna; Melo, Filipe
- Cognitive impairment in fall-related studies in Parkinson’s DiseasePublication . Domingos, Josefa M.; Godinho, Catarina; Dean, John; Coelho, Miguel; Pinto, Anabela; Bloem, Bastiaan R.; Ferreira, Joaquim J.
- Community exercise : a new tool for personalized Parkinson’s care or just an addition to formal care?Publication . Domingos, Josefa; Dean, John; Fernandes, Júlio Belo; Massano, João; Godinho, CatarinaPhysiotherapy and exercise are associated with motor and non-motor benefits in Parkinson’s disease (PD). Community exercise programs may increase ongoing exercise participation and help people with Parkinson’s disease actively participate in their health management. But there is still limited knowledge about these programs regarding their benefits, safety, implications over the long-term, and effective implementation. These questions could hold relevant clinical implications. In this perspective article, we identify the current challenges and reflect upon potential solutions to help community exercise to be implemented as an additional anchor to personalize management models for Parkinson’s disease.
- Exploring barriers and educational needs in implementing dual-task training for Parkinson’s disease : insights from professionalsPublication . Domingos, Josefa; Dean, John; Fernandes, Júlio Belo; Família, Carlos; Fernandes, Sónia; Godinho, CatarinaIntroduction: There is growing evidence suggesting that dual-task training benefits people with Parkinson’s disease (PD) on both physical and cognitive outcomes. However, there is no known data regarding professionals’ educational needs and barriers to its implementation. This study aimed to explore the barriers and educational needs of healthcare and exercise professionals to integrate dual-task training into their practice with people with PD. Methods: We conducted a study based on a web survey. Social media channels were used to recruit a convenience sample of exercise and healthcare professionals working with people with PD. Results: Of the 185 eligible responses, the majority were physiotherapists (68.1%) followed by occupational therapists (10.8%). Most participants attended Parkinson specific training (88.6%) and employed the treatments set up in individual one on-one sessions (58.9%). We identified several barriers to dual-task training implementation, with lack of time (to prepare materials), staying creative and/ or accessing new ideas, unreliable tools for measuring gains, and insufficient expertise as the most referred by participants. The educational needs most referred included accessing examples of interventions in general, knowing what strategies to apply and their application for people with different symptoms. Discussion: Our results highlight that professionals remain challenged to integrate dualtask training into PD clinical care mainly due to knowledge gaps, difficulties in accessing new ideas, and lack of time.
- Implementation of a cognitive and motor exercise hydrotherapy community-based program for individuals with Parkinson’s diseasePublication . Godinho, Catarina; Domingos, Josefa; Dean, John; Melo, Filipe
- Implementation of a community-based exercise program for Parkinson patients: using boxing as an examplePublication . Domingos, Josefa; Radder, Danique; Riggare, Sara; Godinho, Catarina; Dean, John; Graziano, Mariella; Vries, Nienke M. de; Ferreira, Joaquim; Bloem, Bastiaan R.Background: Persons with Parkinson’s disease (PD) benefit from continuous exercise through participation in community-based exercise programs. However, community programs often lack PD-specific knowledge needed to provide safe and adequately dosed exercise.
- Implementation of a community-based exercise program for Parkinson patients: using boxing as an examplePublication . Domingos, Josefa; Radder, Danique; Riggare, Sara; Godinho, Catarina; Dean, John; Graziano, Mariella; Vries, Nienke M de; Ferreira, Joaquim; Bloem, Bastiaan RBackground: Persons with Parkinson's disease (PD) benefit from continuous exercise through participation in community-based exercise programs. However, community programs often lack PD-specific knowledge needed to provide safe and adequately dosed exercise. Objective: To evaluate the acceptability and safety of a PD-specific boxing program in the community. Methods: We developed specific educational resources to facilitate the boxing instructors. We also organized an educational and practical workshop for patients (n = 26) and instructors (n = 10), and assessed: (a) participants' satisfaction; (b) instructors' appreciation of the educational resources; and (c) numbers of patients interested in participating in the boxing program. After 18 months, patients and instructors completed a questionnaire evaluating: (a) participants' satisfaction; (b) adverse events; (c) facilitators and barriers; and (d) proportion of participants at follow-up. Results: Twenty-six persons with PD (62% men) and 10 boxing instructors participated in the workshop. 81% of patients and 80% of instructors were very satisfied. Instructors found the educational materials "very helpful" (60%) or "helpful" (40%). Patients expressed a clear interest (54%) or possible interest (46%) in the program. We initiated classes with 10 participants. At 18-months follow-up, the program consisted of four boxing sessions/week, led by three instructors, with 40 participants. Seventeen patients responded to the questionnaire at follow-up. Participants were "very satisfied" (53%), "satisfied" (35%) and neither satisfied nor unsatisfied (12%) with the program. Adverse effects were mild (e.g., muscle aches). Transportation and physical disability were the main barriers for participation. Conclusions: The boxing program was well-received, with increasing numbers of participants at 18 months. The educational resources can support boxing instructors participating in current and future boxing classes being delivered in the community.
- Is being physically active enough or do people with Parkinson’s disease need structured supervised exercise? Lessons learned from COVID-19Publication . Domingos, Josefa; Familia, Carlos; Fernandes, Júlio Belo; Dean, John; Godinho, CatarinaSocial isolation imposed by the COVID-19 pandemic negatively impacted people’s lifestyles and daily activities. In this work we compared pre- and post-pandemic clinical outcomes in people with Parkinson’s disease, to assess differences according to the type of behaviour and exercise habits adopted by participants. After two months of COVID-19 lockdown, we assessed: changes in exercise behaviour; motor and non-motor aspects of daily life experiences (MDS-UPDRS I & II); activities of daily living (The Schwab & England scale); quality of life (Parkinson Disease Questionnaire); sleep (Parkinson Disease Sleep Scale); falls; and Clinical Global Impression Change. Twenty-seven individuals aged between 57 and 92 years old participated; from these, ten individuals (37%) completely interrupted physical activities, while seventeen (63%) maintained some level of active lifestyle. Regardless of whether they remained active or not, all participants perceived a significant worsening of their clinical condition, reporting an increase in difficulties completing daily activities or chores (37%) and worsening of their health condition (51.8%). The quantifiable influence of exercise habits was borderline for the group who kept active. The active group seem to have a better self-perception of their health condition, although it was not enough to show a clear benefit. People with Parkinson’s disease should be informed that being physically active may not be enough and more structured exercise could be needed.
- Is being physically active enough or do people with Parkinson’s disease need structured supervised exercise? Lessons learned from COVID-19Publication . Domingos, Josefa; Família, Carlos; Fernandes, Júlio Belo; Dean, John; Godinho, Catarina
- Lisbon Intensive Falls Trampoline Training (LIFTT) Program for people with Parkinson’s for balance, gait, and falls : study protocol for a randomized controlled trialPublication . Domingos, Josefa; Dean, John; Fernandes, Júlio Belo; Ramos, Catarina; Grunho, Miguel; Proença, Luís; Vaz, João R.; Godinho, CatarinaFalling and gait difficulties in people with Parkinson’s disease (PD) are associated with impaired reactive postural adjustments and impairments in attentional resources. Combined intensive balance motor and cognitive exercise can be beneficial. However, uncertainties persist regarding the true effects and safety when applying such training. Using trampoline beds may be a favorable safe environment for a highly intensive, cognitive, and balancing training approach. The primary goal of this randomized controlled trial is to assess the effects of an intensive cognitive-motor training program in a safe trampoline environment in addition to usual care on balance impairment, gait, physical capacity, fear of falling, falls frequency and severity, cognition, and clinical impairments in people with mild or moderate PD.
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