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Publication
O enfermeiro enquanto parceiro no cuidar da criança com doença crónica e família
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Abstract(s)
Os cuidados às crianças sofreram uma grande evolução nas últimas décadas: a
nível científico e tecnológico, assistiu-se à diminuição da mortalidade infantil e ao
aumento significativo da sobrevivência de crianças com patologias que até então
implicavam uma morte precoce. Como consequência, houve também um
crescimento da prevalência das doenças crónicas na população pediátrica.
Simultaneamente surgiram os cuidados centrados na família em pediatria, cuja
essência é a parceria no cuidar. No caso do internamento de uma criança com
doença crónica, a parceria entre os enfermeiros e os pais ganha particular destaque
pelos conhecimentos que estes detêm no âmbito dos cuidados de saúde que já
prestam aos filhos diariamente.
Uma verdadeira parceria implica que todos os intervenientes se reconheçam como
parceiros. No entanto, quando uma criança com doença crónica é internada nem
sempre os pais se sentem parceiros no cuidar. Muitas vezes querem participar nos
cuidados aos filhos, mas não se consideram empoderados para o fazerem em
ambiente hospitalar. Noutros casos referem que não querem prestar determinados
cuidados no internamento, contudo têm receio de serem considerados maus pais se
não o fizerem.
Assim sendo, revela-se pertinente a divulgação e promoção da parceria de cuidados
junto dos enfermeiros e dos pais da criança com doença crónica, temática central
deste Relatório de Estágio que foi sustentado no modelo de sistemas de Betty
Neuman.
Neste trabalho descreve-se, reflete-se e analisa-se ainda o percurso que pretende
demonstrar o desenvolvimento de competências que visam a obtenção do grau de
mestre; e as competências comuns e específicas com que se pretende o
reconhecimento do título de enfermeiro especialista em enfermagem de saúde
infantil e pediátrica. O cerne desta jornada foi o Estágio realizado em diversos
contextos, onde tive oportunidade de prestar cuidados específicos e diferenciados.
Através da mobilização dos conhecimentos adquiridos e desenvolvidos prestei
cuidados de nível avançado, promovendo a melhor condição de saúde possível a
cada recém-nascido, criança e adolescente.
Child care has undergone a great evolution in recent decades: at scientific and technological level, there has been a decrease in infant mortality and a significant increase in the survival of children with pathologies that until then implied an early death. As a consequence, there was also an increase in the prevalence of chronic diseases in the pediatric population. Simultaneously family-centered care in pediatrics emerged, the essence of which is the partnership in care. In the case of the hospitalization of a child with a chronic disease, the partnership between the nurses and the parents is particularly highlighted by the knowledge that they already have in the scope of the health care they provide daily to their children at home. A true partnership implies that all intervening recognize themselves as partners. However, when a child with a chronic disease is hospitalized, the parents do not always feel like partners in caring. They often want to participate in child care, but do not consider themselves empowered to do so in a hospital environment. In other cases they report that don’t want to provide certain care during hospitalization, however they are afraid of being considered bad parents if they do not. Therefore, it’s relevant the disclosure and promotion of the care partnership among nurses and parents of children with chronic disease, the central theme of this Internship Report, which was supported by Betty Neuman's systems model. This work describes, reflects and also analyzes the path that intends to demonstrate the development of skills aimed in obtaining a master's degree; and the common and specific competences aimed at recognizing the title of specialized nurse in child and pediatric health. The core of this journey was the Internship carried out in different contexts, where I had the opportunity to provide specific and differentiated care. Through the mobilization of the acquired and developed knowledge, I provided advanced level care, promoting the best possible health condition to each newborn, child and adolescent.
Child care has undergone a great evolution in recent decades: at scientific and technological level, there has been a decrease in infant mortality and a significant increase in the survival of children with pathologies that until then implied an early death. As a consequence, there was also an increase in the prevalence of chronic diseases in the pediatric population. Simultaneously family-centered care in pediatrics emerged, the essence of which is the partnership in care. In the case of the hospitalization of a child with a chronic disease, the partnership between the nurses and the parents is particularly highlighted by the knowledge that they already have in the scope of the health care they provide daily to their children at home. A true partnership implies that all intervening recognize themselves as partners. However, when a child with a chronic disease is hospitalized, the parents do not always feel like partners in caring. They often want to participate in child care, but do not consider themselves empowered to do so in a hospital environment. In other cases they report that don’t want to provide certain care during hospitalization, however they are afraid of being considered bad parents if they do not. Therefore, it’s relevant the disclosure and promotion of the care partnership among nurses and parents of children with chronic disease, the central theme of this Internship Report, which was supported by Betty Neuman's systems model. This work describes, reflects and also analyzes the path that intends to demonstrate the development of skills aimed in obtaining a master's degree; and the common and specific competences aimed at recognizing the title of specialized nurse in child and pediatric health. The core of this journey was the Internship carried out in different contexts, where I had the opportunity to provide specific and differentiated care. Through the mobilization of the acquired and developed knowledge, I provided advanced level care, promoting the best possible health condition to each newborn, child and adolescent.
Description
Keywords
Enfermagem pediátrica Doença crónica Hospitalização Família Relações profissional-família