Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal

Teixeira, Maria João Cardoso; Abreu, Wilson; Costa, Nilza; Maddocks, Matthew

http://hdl.handle.net/10400.26/34139

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Authors

Teixeira, Maria João Cardoso

Abreu, Wilson

Costa, Nilza

Maddocks, Matthew

Abstract(s)

Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly outside of high-income settings. The aim of this study was to explore family caregivers' experiences of caring for a relative living with advanced progressive disease at home, and their perceptions of met and unmet care needs over time.