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How chronic disease affects children's views on being ill and healthy: a comparative study

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dc.contributor.authorLima, Ligia
dc.contributor.authorSilva, Vanessa
dc.contributor.authorLemos, Marina S.
dc.date.accessioned2020-06-12T10:22:47Z
dc.date.available2020-06-12T10:22:47Z
dc.date.issued2017
dc.description.abstractBackground: Understanding children’s views of illness and health is vital to a child-centred approach in patient education and care. Paediatric healthcare providers should incorporate children’s views of health and illness to enable children and their families to participate in selfmanagement plans and achieve better health outcomes. However, there is limited scientific knowledge regarding the views of children with specific diseases. Method: This comparative study investigated whether and in what ways the experience of having different chronic diseases influenced children’s views of being ill and healthy. The participants were 82 children aged 8– 13 years diagnosed with a chronic disease (31 had asthma, 27 had diabetes and 24 had cancer). A group of 81 healthy children participated as a comparison group. The ‘draw-and-write’ technique was used to collect the children’s views, and the data were analysed using a previously validated coding system (inter-rater agreement of 93%) and subsequently quantified for the examination of any differences in relation to illness. Results: Statistically significant differences were found in all dimensions of the children’s conceptions of health and illness according to whether they had a chronic condition (effect sizes calculated with Cohen’s d ranged from 0.35 to 1.22). Globally, the chronically ill children expressed a narrower definition of being healthy and ill than their healthy peers. Moreover, the comparison among the children with asthma, diabetes and cancer showed differences that seemed to reflect their specific experiences with their type of chronic disease and the associated treatments (effect sizes calculated with Etasquared ranged from 0.07 to 0.25). Conclusions: This study’s findings can be used to guide education and clinical services tailored to ill children suffering from different chronic conditionspt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationScand J Caring Sci; 2017; 31; 922–929pt_PT
dc.identifier.doi10.1111/scs.12415pt_PT
dc.identifier.eissn1471-6712
dc.identifier.urihttp://hdl.handle.net/10400.26/32555
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherWileypt_PT
dc.relation.publisherversionhttps://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12415pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAdolescentpt_PT
dc.subjectCase-Control Studiespt_PT
dc.subjectChildpt_PT
dc.subjectChronic Diseasept_PT
dc.subjectFemalept_PT
dc.subjectHumanspt_PT
dc.subjectMalept_PT
dc.subjectPatient-Centered Carept_PT
dc.subjectIllness Behaviorpt_PT
dc.titleHow chronic disease affects children's views on being ill and healthy: a comparative studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage929pt_PT
oaire.citation.issue4pt_PT
oaire.citation.startPage922pt_PT
oaire.citation.titleScandinavian Journal of Caring Sciencespt_PT
oaire.citation.volume31pt_PT
person.familyNameLima
person.givenNameLigia
person.identifier.ciencia-idFD10-26FF-19A1
person.identifier.orcid0000-0003-4556-0485
person.identifier.ridO-1347-2015
person.identifier.scopus-author-id55152017300
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationacaf408a-a2bb-4a23-8afa-c6a8b9306f9d
relation.isAuthorOfPublication.latestForDiscoveryacaf408a-a2bb-4a23-8afa-c6a8b9306f9d

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