Loading...
Publication
Cuidados paliativos à criança com cardiopatia congénita complexa e sua família
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 75.07 MB | Adobe PDF |
Advisor(s)
Abstract(s)
A evolução tecnológica, aliada ao progresso médico e cirúrgico, permitiu o
decréscimo da taxa de mortalidade nas crianças com Cardiopatia Congénita
Complexa. Porém, a sua sobrevida encontrasse por vezes associada a
hospitalizações múltiplas e prolongadas, com consequentes implicações na sua
qualidade de vida e da própria família (Bertaud et al., 2016; Morell et al., 2019). Nesta
ótica, é relevante aprofundar, em que medida a implementação de uma abordagem
paliativa a esta população poderá ser benéfica.
Embora o crescente interesse na incorporação dos Cuidados Paliativos
Pediátricos no cuidado à criança e família com Cardiopatia Congénita Complexa, as
referenciações permanecem baixas. Neste sentido, foi definido como objeto de estudo
as intervenções de enfermagem facilitadoras de uma abordagem paliativa à criança
com Cardiopatia Congénita Complexa e família.
Simultaneamente, será analisado o percurso formativo experienciado com vista
ao desenvolvimento de competências enquanto Enfermeira Especialista em
Enfermagem de Saúde Infantil e Pediátrica e como Mestre em Enfermagem. Para a
sua elaboração foi adotada uma metodologia reflexiva, tendo por base o método
projeto. O referencial teórico foi constituído pela aplicação da Teoria do Conforto de
Katharine Kolcaba conjuntamente com as orientações para a prática dos Cuidados
Centrados na Família e dos Cuidados Não Traumáticos.
Da análise reflexiva saliento a continua necessidade de sensibilização dos
profissionais que cuidam destas crianças e famílias, bem como da própria população
para a problemática dos Cuidados Paliativos Pediátricos. A implementação desta
filosofia de cuidados irá potenciar a maximização da qualidade de vida e do potencial
de desenvolvimento e conforto da criança e família. Para tal, é indispensável o
desenvolvimento de políticas de melhoria da qualidade nos serviços, nas instituições
e a nível governamental, facilitando o apoio à criança com necessidades paliativas e
família.
Technological advancements, combined with medical and surgical progress, have led to a decrease in mortality rates among children with Complex Congenital Heart Disease. However, their survival is sometimes associated with multiple and prolonged hospitalizations, which have consequent implications for their quality of life and that of their families (Bertaud et al., 2016; Morell et al., 2019). In this regard, it is relevant to investigate to what extent the implementation of a palliative approach to this population can be beneficial. Despite the growing interest in the incorporation of Pediatric Palliative Care in the care of children and families with Complex Congenital Heart Disease, referrals remain low. Therefore, the study focused on nursing interventions that facilitate a palliative approach to children with Complex Congenital Heart Disease and their families. Simultaneously, the study will analyze the educational journey experienced in order to develop competencies as a Specialist Nurse in Child and Pediatric Health Nursing and as a Master’s in Nursing. A reflective methodology was adopted for its development, based on the project method. The theoretical framework consisted of the application of Katharine Kolcaba's Comfort Theory, together with guidelines for the practice of Family-Centered Care and Atraumatic Care. From the reflective analysis, I highlight the ongoing need to raise awareness among professionals who care for these children and families, as well as among the general population, regarding the issues surrounding Pediatric Palliative Care. The implementation of this care philosophy will enhance the maximization of the child and family's quality of life, developmental potential, and comfort. To achieve this, it is essential to develop policies aimed at improving the quality of services, institutions, and governmental support, facilitating care for children with palliative needs and their families.
Technological advancements, combined with medical and surgical progress, have led to a decrease in mortality rates among children with Complex Congenital Heart Disease. However, their survival is sometimes associated with multiple and prolonged hospitalizations, which have consequent implications for their quality of life and that of their families (Bertaud et al., 2016; Morell et al., 2019). In this regard, it is relevant to investigate to what extent the implementation of a palliative approach to this population can be beneficial. Despite the growing interest in the incorporation of Pediatric Palliative Care in the care of children and families with Complex Congenital Heart Disease, referrals remain low. Therefore, the study focused on nursing interventions that facilitate a palliative approach to children with Complex Congenital Heart Disease and their families. Simultaneously, the study will analyze the educational journey experienced in order to develop competencies as a Specialist Nurse in Child and Pediatric Health Nursing and as a Master’s in Nursing. A reflective methodology was adopted for its development, based on the project method. The theoretical framework consisted of the application of Katharine Kolcaba's Comfort Theory, together with guidelines for the practice of Family-Centered Care and Atraumatic Care. From the reflective analysis, I highlight the ongoing need to raise awareness among professionals who care for these children and families, as well as among the general population, regarding the issues surrounding Pediatric Palliative Care. The implementation of this care philosophy will enhance the maximization of the child and family's quality of life, developmental potential, and comfort. To achieve this, it is essential to develop policies aimed at improving the quality of services, institutions, and governmental support, facilitating care for children with palliative needs and their families.
Description
Keywords
Enfermagem pediátrica Família Criança Cardiopatias congénitas Cuidados paliativos