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Publication
Factors influencing the experience of the terminal phase and the grieving process: the primary caregiver’s perspective
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Advisor(s)
Abstract(s)
Theoretical framework: The experience of the terminal phase and death by patients and caregivers is influenced by multiple
factors. This study aimed at understanding this experience from the primary caregiver’s perspective.
Objectives: To describe the factors that, from the primary caregiver’s perspective, influenced the experience of disease in the
terminal phase and mourning for the death of a close person; To understand the influence of nurses’ conduct on the experience
of disease in the terminal phase and mourning for the death of a close person from the primary caregiver’s perspective.
Methodology: Qualitative descriptive exploratory study.
Results: The following factors were valued: To Assume the Caregiver’s Role, To allow for the end-of-life/terminal phase to take
place at home/near the family and Process of Care. Regarding the nurses’ conduct, the knowledge, communication and
relationship established by nurses were also valued.
Conclusion: In addition to expanding the implementation of specific palliative care teams, the acquisition and development of
basic skills in this area by most health care professionals is essential.
Description
Keywords
terminally ill grief caregivers nurse’s role
Citation
Pazes, M., Nunes, L. & Barbosa, A. (2014). Factors influencing the experience of the terminal phase and the grieving process: the primary caregiver’s perspective. Revista de Enfermagem Referência, 4 (3), 95-104.