Barriers to family resilience in caregivers of people who have schizophrenia

Fernandes, Júlio Belo; Fernandes, Sónia Belo; Almeida, Ana Silva; Cunningham, Rhona Cruzet

http://hdl.handle.net/10400.26/58660

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Authors

Fernandes, Júlio Belo

Fernandes, Sónia Belo

Almeida, Ana Silva

Cunningham, Rhona Cruzet

Abstract(s)

Purpose: To explore the barriers to family resilience in caregivers of peoplewho have schizophrenia. Design: A qualitative descriptive approach was used.Methods: Semistructured interviews were conducted with family caregiversof patients with schizophrenia registered at the psychiatry outpatient unitof a hospital center. Content analysis was performed on audio-recordedand verbatim-transcribed interviews. The consolidated criteria for reportingqualitative research (COREQ) checklist was applied to this study. Results: A total of 31 family caregivers participated, the majority of whomwere female (71%) with an average age of 57.5 years. Most participantslived with and cared for their relative (90.3%). The caregiver role wasassumed mostly by mothers (54.8%) and fathers (22.6%). Barriers to fam-ily resilience in caregivers of people experiencing schizophrenia broadlyfall under five categories: lack of knowledge about the disease, social stigma,expressed emotion, involvement in the relationship, and blame. Conclusions: In view of the paucity of studies exploring and understand-ing the barriers to family resilience, this study presents itself as one ofthe first in this area. There are different barriers to family resilience. Thisresearch provides an overview and an understanding of key barriers tofamily resilience in caregivers of people experiencing schizophrenia.Clinical Relevance: There is a need for nurses to help families to beresilient. By understanding the barriers to resilience, nurses are able tofocus on these factors and help families to remove or reduce theirinfluence.This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use anddistribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

Keywords

Barriers caregivers family qualitative research resilience psychological schizophrenia

URI

http://hdl.handle.net/10400.26/58660

Citation

Fernandes, J.B., Fernandes, S.B., Almeida, A.S. and Cunningham, R.C. (2021), Barriers to Family Resilience in Caregivers of People Who Have Schizophrenia. Journal of Nursing Scholarship, 53: 393-399. https://doi.org/10.1111/jnu.12651