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Publication
A pessoa portadora de esclerose mĂșltipla, o familiar cuidador e processo familiar
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Advisor(s)
Abstract(s)
Objectives: To characterize the person with Multiple Sclerosis and the family member
caregiver; to evaluate the needs of families with a member with Multiple Sclerosis
within the family process.
Methods: The study is quantitative, descriptive, exploratory and cross-sectional,
with a sample of 25 families. In the evaluation of the family process was followed the
operative matrix of the Dynamic Model of Family Assessment and Intervention. Data
collection was organized through semi-structured interviews.
Results: The person with Multiple Sclerosis is mostly female (76%), with the most
referenced limitations being extreme fatigue (80%), spasticity and weakness (44%).
The person identified as a caregiver is mostly female (56%), spouse / partner (48%).
Within the family process, families are mostly functional.
Conclusion: Having knowledge of the characteristics and needs of each family will
allow the family nurse a more targeted and specific intervention.
Description
Keywords
Multiple sclerosis Caregiver Family nurse Family
Citation
Marques, E., Gonçalves, E., Murteiro, A., Vitor, C., Figueiredo, M.H., Lebreiro, M., y Rego,R. A pessoa portadora de esclerose mĂșltipla, o familiar cuidador e processo familiar. Suplemento digital Rev ROL Enferm 2020; 43(1): 118-123