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Perfil do cuidador informal principal da pessoa adulta com acidente vascular cerebral em Portugal com menos de 6 meses de experiência
| Name: | Description: | Size: | Format: | |
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| 1.32 MB | Adobe PDF |
Advisor(s)
Abstract(s)
Introdução: O cuidador informal principal da pessoa com Acidente Vascular Cerebral
pode ter de prestar apoio subitamente, com pouca preparação. Numa fase inicial, a
prestação de cuidados e as dificuldades de adaptação, podem provocar alterações na sua
rotina e gerar problemas de saúde físicos e mentais. Em Portugal não se conhecem dados
sobre estes cuidadores de modo aprofundado, sendo objetivo deste estudo caracterizar o
seu perfil.
Metodologia: Realizou-se um estudo observacional transversal, integrando uma amostra
de cuidadores informais principais com recolha de dados através de um caderno de
instrumentos autoreportados, incluindo um questionário sociodemográfico e de
caracterização dos cuidados prestados, a World Health Organization Quality of Life - Bref,
o Questionário de Avaliação da Sobrecarga do Cuidador Informal, a General Self-Efficacy
e a Escala de Rankin modificada. Para a análise de dados utilizou-se estatística descritiva e
inferencial.
Resultados: A amostra foi de 50 participantes (média de idade=59,86),
predominantemente do sexo feminino, 42% tiveram de modificar o seu trabalho e
despenderam de 46,98 horas por semana na prestação de cuidados. Os valores da qualidade
de vida (QV) e sobrecarga foram razoáveis (85,08 e 69,94, respetivamente), e os da
autoeficácia bons (32,14). Os níveis de sobrecarga foram mais elevados entre cuidadores
do sexo feminino e associam-se a mais comorbilidades, à prestação de um maior número
de cuidados e a mais horas por dia, a maior dependência funcional da pessoa cuidada, a ter
ajuda por parte de outra pessoa ou serviço e a ter mais do que uma pessoa a cargo. A QV
dos cuidadores está negativamente associada aos níveis de sobrecarga e positivamente
associada à sua autoeficácia.
Conclusão: Estes resultados podem ser usados pelas equipas que preparam as altas para
identificarem potenciais cuidadores vulneráveis e prepararem a alta de modo
personalizado, atendendo a indicadores de QV, sobrecarga e autoeficácia.
Introduction: The primary informal caregiver of the person with a stroke may have to provide support suddenly, with little preparation. In an initial phase, the provision of care and adaptation difficulties can cause changes in their routine and generate physical and mental health problems. In Portugal, data on these caregivers is not known in depth, and the objective of this study is to characterize their profile. Methodology: A cross-sectional observational study was carried out, integrating a sample of primary informal caregivers with data collection through a notebook of self-reported instruments, including a sociodemographic questionnaire and characterization of the care provided, the World Health Organization Quality of Life - Bref, the Informal Caregiver Burden Assessment Questionnaire, the General Self-Efficacy and the modified Rankin Scale. For data analysis, descriptive and inferential statistics were used. Results: The sample consisted of 50 participants (mean age=59,86), predominantly female, 42% had to change their work and spent 46,98 hours a week providing care. Quality of life (QoL) and burden values were reasonable (85,08 and 69,94, respectively), and self-efficacy good (32,14). Burden levels were higher among female caregivers and are associated with more comorbidities, providing more care and more hours per day, greater functional dependence on the person cared for, having help from another person or service and having more than one person in charge. Caregivers' QoL is negatively associated with burden levels and positively associated with their self-efficacy. Conclusion: These results can be used by teams that prepare discharges to identify potential caregivers and prepare discharge in a personalized way, taking into account QoL, burden and self-efficacy indicators.
Introduction: The primary informal caregiver of the person with a stroke may have to provide support suddenly, with little preparation. In an initial phase, the provision of care and adaptation difficulties can cause changes in their routine and generate physical and mental health problems. In Portugal, data on these caregivers is not known in depth, and the objective of this study is to characterize their profile. Methodology: A cross-sectional observational study was carried out, integrating a sample of primary informal caregivers with data collection through a notebook of self-reported instruments, including a sociodemographic questionnaire and characterization of the care provided, the World Health Organization Quality of Life - Bref, the Informal Caregiver Burden Assessment Questionnaire, the General Self-Efficacy and the modified Rankin Scale. For data analysis, descriptive and inferential statistics were used. Results: The sample consisted of 50 participants (mean age=59,86), predominantly female, 42% had to change their work and spent 46,98 hours a week providing care. Quality of life (QoL) and burden values were reasonable (85,08 and 69,94, respectively), and self-efficacy good (32,14). Burden levels were higher among female caregivers and are associated with more comorbidities, providing more care and more hours per day, greater functional dependence on the person cared for, having help from another person or service and having more than one person in charge. Caregivers' QoL is negatively associated with burden levels and positively associated with their self-efficacy. Conclusion: These results can be used by teams that prepare discharges to identify potential caregivers and prepare discharge in a personalized way, taking into account QoL, burden and self-efficacy indicators.
Description
Keywords
Acidente Vascular Cerebral Cuidador Informal Principal Cuidador Informal Perfil Portugal Stroke Informal Primary Caregiver Informal Caregiver Profile