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The relationship between frailty, functional dependence, and healthcare needs among community‐dwelling people with moderate to severe dementia

2018Journal article Open access
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dc.contributor.authorAbreu, Wilson
dc.contributor.authorTolson, Debbie
dc.contributor.authorJackson, Graham A.
dc.contributor.authorStaines, Harry
dc.contributor.authorCosta, Nilza
dc.date.accessioned2020-11-24T12:19:34Z
dc.date.available2020-11-24T12:19:34Z
dc.date.issued2018
dc.description.abstractThis paper examines the healthcare needs of community-dwelling older people living in Porto, Portugal, diagnosed with moderate or severe dementia, linked to functional dependency, cognitive decline, limitations in the activities of daily life, and frailty levels. A sample of 83 participants was recruited. Data were collected between 2013 and 2017. A sociodemographic questionnaire, the Clinical Dementia Rating (CDR), the Barthel Index (BI), the Lawton and Brody Instrumental Activities of Daily Living (IADL) Scale, and the Edmonton Frail Scale (EFS) were used. A set of 26 healthcare needs was defined to support the assessment. The Pearson chi-square or Fisher's exact test (as appropriate) was used to examine the association of the needs (unmet and met) with the levels of dementia and frailty. Participants were diagnosed previously with moderate or severe dementia and benefited from a structured home-care program. There was a high number rated as "severe dementia," "fully dependent," "severely or fully dependent in the activities of daily living (ADL)," and "severe frailty." There were statistically significant differences among needs identified in people with moderate or severe dementia and moderate or severe frailty. The most prevalent healthcare needs in the sample were food preparation, medication/taking pills, looking after their home, toilet use, sensory problems, communication/interaction, bladder, bowels, eating and drinking, memory, sleeping, and falls prevention. In particular, the study identifies a set of needs that are present simultaneously in both frailty and dementia stages. This study underlines that despite well-structured home-care programs for people with dementia, unmet health needs remain. Timely healthcare needs assessment may help professionals to avoid fragmented care and to tailor quality-integrated interventions, including the emotional and psychological balance of the caregiver.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationHealth Soc Care Community. 2019;27:642–653.pt_PT
dc.identifier.doi10.1111/hsc.12678pt_PT
dc.identifier.eissn1365-2524
dc.identifier.urihttp://hdl.handle.net/10400.26/34140
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherWileypt_PT
dc.relation.publisherversionhttps://onlinelibrary.wiley.com/doi/epdf/10.1111/hsc.12678pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt_PT
dc.subjectAgedpt_PT
dc.subjectAged, 80 and overpt_PT
dc.subjectCaregiverspt_PT
dc.subjectCognitive Dysfunctionpt_PT
dc.subjectDementiapt_PT
dc.subjectFemalept_PT
dc.subjectFrail Elderlypt_PT
dc.subjectGeriatric Assessmentpt_PT
dc.subjectHome Care Servicespt_PT
dc.subjectHumanspt_PT
dc.subjectMalept_PT
dc.subjectMiddle Agedpt_PT
dc.subjectNeeds Assessmentpt_PT
dc.subjectPortugalpt_PT
dc.subjectSeverity of Illness Indexpt_PT
dc.subjectActivities of Daily Livingpt_PT
dc.subjectIndependent Livingpt_PT
dc.titleThe relationship between frailty, functional dependence, and healthcare needs among community‐dwelling people with moderate to severe dementiapt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage653pt_PT
oaire.citation.issue3pt_PT
oaire.citation.startPage642pt_PT
oaire.citation.titleHealth & Social Care in the Communitypt_PT
oaire.citation.volume27pt_PT
person.familyNameAbreu
person.givenNameWilson
person.identifier.ciencia-id0313-F7A6-AE60
person.identifier.orcid0000-0002-0847-824X
person.identifier.scopus-author-id57191608626
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication2a9bfbb4-8930-4c6c-9ed5-21d856df4a1d
relation.isAuthorOfPublication.latestForDiscovery2a9bfbb4-8930-4c6c-9ed5-21d856df4a1d

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