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Qualidade de vida da criança com cardiopatia congénita: que instrumentos de avaliação?
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Advisor(s)
Abstract(s)
A qualidade de vida da criança com cardiopatia congénita é uma preocupação para todos os profissionais de
saúde que diariamente desenvolvem actividades com estas crianças. Perceber com que qualidade de vida crescem
e se desenvolvem, é essencial para uma tomada de decisão consciente e individualizada relativamente ao tratamento
a instituir. Com o intuito de identificar escalas específicas para avaliação da sua qualidade de vida, foi
realizada pesquisa em bases de dados, da qual emergiram dois instrumentos: o ConQOL e o PCQLI. Estas ferramentas
de avaliação da qualidade de vida da criança com cardiopatia congénita apresentam duas versões adaptadas
às idades das crianças/adolescentes e uma delas contempla também a opinião dos pais relativa à qualidade
de vida dos filhos.
The quality of life of children with congenital heart disease is a concern for all health professionals dealing, on a daily basis, with these children. It is essential for a good decision-making and individualized treatment to follow, to realize with which quality of life are they growing and developing. In order to identify speci$c scales for assessing the quality of life, a survey and search in databases was conducted. From this survey and search two instruments emerged: the ConQOL and PCQLI. These tools for assessing the quality of life of children with congenital heart disease have two versions tailored to teens and children ages, and one of them also includes the parents’ opinion on the quality of life of their children.
The quality of life of children with congenital heart disease is a concern for all health professionals dealing, on a daily basis, with these children. It is essential for a good decision-making and individualized treatment to follow, to realize with which quality of life are they growing and developing. In order to identify speci$c scales for assessing the quality of life, a survey and search in databases was conducted. From this survey and search two instruments emerged: the ConQOL and PCQLI. These tools for assessing the quality of life of children with congenital heart disease have two versions tailored to teens and children ages, and one of them also includes the parents’ opinion on the quality of life of their children.
Description
Keywords
Qualidade de vida Criança Cardiopatia Congénita
Citation
Publisher
Escola Superior de Enfermagem do Porto