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Impacto da experiência do paciente no tratamento do glaucoma : um estudo sobre o patient journey
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O glaucoma constitui uma das principais causas de cegueira irreversível, afetando de forma significativa a qualidade de vida dos doentes. Sendo uma neuropatia ótica progressiva e, na maioria dos casos, assintomática, requer uma abordagem multidisciplinar ao longo do patient journey, com o propósito de retardar a sua progressão e minimizar o impacto funcional.
A presente tese analisa o patient journey dos doentes com glaucoma, com especial enfoque no papel do farmacêutico no acompanhamento e orientação destes doentes, promovendo a sua compreensão, motivação e adesão à terapêutica.
A análise do percurso do doente permite uma visão integrada das experiências e desafios enfrentados, incluindo barreiras no acesso ao diagnóstico precoce, dificuldades na adesão ao tratamento, monitorização da progressão da doença e necessidade de reforçar a literacia e a educação em saúde.
Ao longo das diferentes fases de diagnóstico, tratamento e seguimento, o farmacêutico assume um papel estratégico, contribuindo para a adesão à terapêutica, esclarecimento de dúvidas sobre os medicamentos e identificação de estratégias comportamentais que facilitem a gestão diária da doença.
O colírio oftálmico, forma farmacêutica essencial no tratamento do glaucoma, apresenta particular complexidade na administração, sendo frequente a ocorrência de erros na instilação da gota no saco conjuntival, o que compromete a eficácia terapêutica.
Neste contexto, o farmacêutico desempenha um papel determinante na educação e supervisão da correta utilização do medicamento. À medida que a doença evolui, torna-se comum a necessidade de associar diferentes princípios ativos, aumentando a complexidade da terapêutica e exigindo maior acompanhamento farmacêutico para garantir a adesão e a segurança do tratamento.
Ao mapear as etapas do patient journey dos doentes com glaucoma, esta tese contribui para o desenvolvimento de intervenções mais eficazes e centradas no doente, sob uma perspetiva farmacêutica, promovendo uma abordagem integrada e personalizada na gestão da doença e sublinhando a relevância do farmacêutico na obtenção de melhores resultados clínicos e na melhoria da qualidade de vida.
Glaucoma is one of the leading causes of irreversible blindness, significantly impacting patients’ quality of life. As a progressive and asymptomatic optic neuropathy, it requires multidisciplinary interventions throughout the patient’s journey in order to reduce its progression. This thesis explores the patient journey of individuals with glaucoma, with a particular focus on the role of the pharmacist in supporting and guiding the patient to facilitate understanding and motivation in disease management. The analysis of the patient journey provides an integrated view of the experiences and challenges faced by these patients, including barriers to early diagnosis, treatment adherence, disease progression, and the need for awareness and education about the condition. Throughout the various stages of diagnosis, treatment, and monitoring, the pharmacist plays a strategic role in facilitating treatment adherence, clarifying questions about medicines, and assisting in the identification of possible behavioral strategies that improve patients’ daily lives. The ophthalmic eye drop is a dosage form with complex administration, and many patients face difficulties in its use, with some failing to correctly instill the drop into the conjunctival sac, thereby resulting in ineffective therapy. Here, the pharmacist has a fundamental role in ensuring the correct use of the medicine. Moreover, as the patient progresses through the stages of the patient journey, the expected increase in intraocular pressure often requires the combination of several active ingredients in different eye drops, further complicating treatment management and adherence. By mapping the stages of the patient journey with glaucoma, this thesis contributes to the development of effective, patient-centered interventions from a pharmaceutical perspective, promoting a holistic and personalized approach to disease management and emphasizing the pharmacist’s contribution and importance in improving clinical outcomes and patients’ quality of life.
Glaucoma is one of the leading causes of irreversible blindness, significantly impacting patients’ quality of life. As a progressive and asymptomatic optic neuropathy, it requires multidisciplinary interventions throughout the patient’s journey in order to reduce its progression. This thesis explores the patient journey of individuals with glaucoma, with a particular focus on the role of the pharmacist in supporting and guiding the patient to facilitate understanding and motivation in disease management. The analysis of the patient journey provides an integrated view of the experiences and challenges faced by these patients, including barriers to early diagnosis, treatment adherence, disease progression, and the need for awareness and education about the condition. Throughout the various stages of diagnosis, treatment, and monitoring, the pharmacist plays a strategic role in facilitating treatment adherence, clarifying questions about medicines, and assisting in the identification of possible behavioral strategies that improve patients’ daily lives. The ophthalmic eye drop is a dosage form with complex administration, and many patients face difficulties in its use, with some failing to correctly instill the drop into the conjunctival sac, thereby resulting in ineffective therapy. Here, the pharmacist has a fundamental role in ensuring the correct use of the medicine. Moreover, as the patient progresses through the stages of the patient journey, the expected increase in intraocular pressure often requires the combination of several active ingredients in different eye drops, further complicating treatment management and adherence. By mapping the stages of the patient journey with glaucoma, this thesis contributes to the development of effective, patient-centered interventions from a pharmaceutical perspective, promoting a holistic and personalized approach to disease management and emphasizing the pharmacist’s contribution and importance in improving clinical outcomes and patients’ quality of life.
Descrição
Dissertação para obtenção do grau de Mestre no Instituto Universitário Egas Moniz
Palavras-chave
Glaucoma Patient Journey Farmacêutico