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Understanding quality of life's challenges in sarcoma patients: A mixed-methods study

2024Journal article Restricted access
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dc.contributor.authorAlmeida, Ana Maria
dc.contributor.authorLima, Ligia
dc.contributor.authorMartins, Teresa
dc.date.accessioned2025-02-12T11:46:31Z
dc.date.available2025-02-12T11:46:31Z
dc.date.issued2024
dc.description.abstractPurpose: Sarcoma, a highly aggressive form of cancer, profoundly affects patients both physically and psychologically. This study aimed to assess sarcoma patients' health-related quality of life and explore their experiences of living with the disease and their specific care requirements. Methods: This research employed a convergent parallel mixed-methods design. Fifty-two sarcoma patients completed the European Portuguese version of the EORTC QLQ-C30 questionnaire, and seven of them participated in semi-structured interviews. Descriptive measures, Cronbach alpha for internal consistency, t-teste-Anova and stepwise regression were employed in the quantitative analysis. Qualitative data was analysed thematically. Results: The most affected Quality of life (QoL) dimensions were role functioning and global health, areas of functioning that were also described as impacted in patients' experiences. Symptoms like insomnia, pain, and fatigue were frequently reported. Symptoms such as fatigue, pain, and financial difficulty explain QoL variance. No significant differences in QoL were found according to the different forms of treatment. Analysis of the interviews revealed three overarching themes: (1) disruption of daily life, (2) adaptation to life with sarcoma, and (3) the demand for more personalized care, allowing to gain a deeper understanding of living with sarcoma. Conclusion: The results underscore the significance of delivering care that enhances the quality of life for sarcoma patients, addressing both their physical and psychosocial needs, and providing personalized support throughout all stages of the disease. Keywords: Health related quality of life; Mixed methods; Oncology; Sarcoma; Symptoms.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationAlmeida, A. M., Lima, L., & Martins, T. (2024). Understanding quality of life's challenges in sarcoma patients: A mixed-methods study. European journal of oncology nursing : the official journal of European Oncology Nursing Society, 70, 102585. https://doi.org/10.1016/j.ejon.2024.102585pt_PT
dc.identifier.doi10.1016/j.ejon.2024.102585pt_PT
dc.identifier.eissn1532-2122
dc.identifier.urihttp://hdl.handle.net/10400.26/54376
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.relation.publisherversionhttps://www.sciencedirect.com/science/article/pii/S1462388924000838?via%3Dihubpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectHealth related quality of lifept_PT
dc.subjectMixed methodspt_PT
dc.subjectOncologypt_PT
dc.subjectSarcomapt_PT
dc.subjectSymptomspt_PT
dc.titleUnderstanding quality of life's challenges in sarcoma patients: A mixed-methods studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.startPage102585pt_PT
oaire.citation.titleEuropean Journal of Oncology Nursingpt_PT
oaire.citation.volume70pt_PT
person.familyNameLima
person.familyNameMartins
person.givenNameLigia
person.givenNameTeresa
person.identifier.ciencia-idFD10-26FF-19A1
person.identifier.ciencia-id5E18-D769-1D3D
person.identifier.orcid0000-0003-4556-0485
person.identifier.orcid0000-0003-3395-7653
person.identifier.ridO-1347-2015
person.identifier.scopus-author-id55152017300
person.identifier.scopus-author-id57164419600
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationacaf408a-a2bb-4a23-8afa-c6a8b9306f9d
relation.isAuthorOfPublicationfd42fa93-62c2-442d-b9a2-321bc9029145
relation.isAuthorOfPublication.latestForDiscoveryacaf408a-a2bb-4a23-8afa-c6a8b9306f9d

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