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Tomadas de decisão em famílias com polineuropatia amiloidótica familiar
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Advisor(s)
Abstract(s)
Integrado num projeto de investigação mais alargado desenvolvido no âmbito do doutoramento em Ciências
de Enfermagem, este estudo pretende identificar se existe conflito decisional e quais os níveis de satisfação nos
doentes com Polineuropatia Amiloidótica Familiar (PAF) em algumas das tomadas de decisão tidas durante o
processo de doença. Desenvolveu-se assim um estudo de cariz quantitativo, exploratório, descritivo. Os dados
foram colhidos através de um questionário que incluía características sócio demográficas e as escalas “Escala
de Conflitos de Tomadas de Decisão em Saúde (ECTDS)” de (O`Connor; 1995), e “Escala da Satisfação com
a Decisão em Saúde (ESDS)”de (Holmes-Rovner et al.; 1996) adaptadas para língua portuguesa por (Martinho,
J. ; Martins, M. & Angelo, M.; 2011). A colheita realizou-se entre Janeiro e Junho de 2011 a uma população de
doentes distribuídos por 8 núcleos da Associação Portuguesa de Paramiloidose e uma Consulta de Paramiloidose
no Centro de Saúde da Covilhã – ACES da Cova da Beira. A amostra constituiu-se por 53 doentes. Para o tratamento
de dados recorreu-se à estatística descritiva e analise multivariada, considerando uma probabilidade de
erro máximo de 5%. Usou-se a estatística não paramétrica em amostras inferiores a 30 sujeitos, com recurso ao
programa SPSS versão 19.0.
Integrated into a broader research project developed under the PhD in Nursing Science, this study aims to identify whether there is conflict and what are the decision-satisfaction levels in patients with Familial Amyloid Polyneuropathy (FAP) in some decision-making during the process of disease. It was thus developed a study of quantitative, exploratory and descriptive nature. Data were collected through a questionnaire that included sociodemographic characteristics and scales: “Conflict Scale Decision Making in Health (ECTDS)” by (O’Connor, 1995), and” Scale of Satisfaction with Decision Making in Health (ESDS) “by (Holmes-Rovner et al., 1996) adapted to Portuguese by (Martin, J., Martin, & M. Angelo, M., 2011). Collecting took place between January and June 2011 to a population of patients spread over 8 cores of the Portuguese Amyloidosis Amyloidosis and Consultation Center Health Covilhã - ACES Cova da Beira. The sample consisted of 53 patients. For data processing we used descriptive statistics and multivariate analysis, considering a likely maximum error of 5%. We used the nonparametric statistics in samples of less than 30 subjects, using the SPSS version 19.0.
Integrated into a broader research project developed under the PhD in Nursing Science, this study aims to identify whether there is conflict and what are the decision-satisfaction levels in patients with Familial Amyloid Polyneuropathy (FAP) in some decision-making during the process of disease. It was thus developed a study of quantitative, exploratory and descriptive nature. Data were collected through a questionnaire that included sociodemographic characteristics and scales: “Conflict Scale Decision Making in Health (ECTDS)” by (O’Connor, 1995), and” Scale of Satisfaction with Decision Making in Health (ESDS) “by (Holmes-Rovner et al., 1996) adapted to Portuguese by (Martin, J., Martin, & M. Angelo, M., 2011). Collecting took place between January and June 2011 to a population of patients spread over 8 cores of the Portuguese Amyloidosis Amyloidosis and Consultation Center Health Covilhã - ACES Cova da Beira. The sample consisted of 53 patients. For data processing we used descriptive statistics and multivariate analysis, considering a likely maximum error of 5%. We used the nonparametric statistics in samples of less than 30 subjects, using the SPSS version 19.0.
Description
Keywords
Tomada de decisão Conflito decisional Satisfação Família
Citation
Publisher
Escola Superior de Enfermagem do Porto