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- Participatory action research: A strategy for improving self-care management in chronic obstructive pulmonary disease patientsPublication . Padilha, José Miguel Santos Castro; Sousa, P.; Pereira, Filipe Miguel SoaresParticipatory action research (PAR) facilitates the change process in clinical practice and promotes knowledge development. This paper highlights the potential of PAR to implement changes in healthcare oriented for the development of self-care management skills in patients with chronic obstructive pulmonary disease (COPD). In COPD patients, the preservation of self-care autonomy and quality of life depends on the patients’ ability to adopt pharmacological treatments and behavioural changes. In a Portuguese central hospital nurses (n¼52) have identified a gap between the nursing care and the perceived needs of the patients, and developed a healthcare solution based on a PAR methodology supported by an overlapping cycle of action and research. The PAR took place during 14 months. The PAR allowed the change in the care model in use, in the organization and the nursing care documentation. This change was focused on the development of self-care management skills, responding to the needs and expectations of those involved. The PAR proved to be an appropriate methodology to identify and implement changes that contribute to the safety, quality and access to healthcare.
- Maintaining Effects of Pulmonary Rehabilitation at Home in Chronic Obstructive Pulmonary Disease: A Systematic Literature ReviewPublication . Pinto, Duarte; Spencer, Lissa; Pereira, Soraia; Puga Machado, Paulo Alexandre; Sousa, P.; Padilha, José Miguel Santos CastroTo systematize strategies that may support patients with Chronic Obstructive Pulmonary Disease to maintain the effects of pulmonary rehabilitation over time. This systematic literature review was conducted, and the evidence was electronically searched in the Web of Science, Scopus, and EBSCO databases. This review included randomized controlled clinical trials, published until September 2019, that addressed components of an unsupervised home-based pulmonary rehabilitation program, maintenance strategies following outpatient pulmonary rehabilitation programs, as well as data on outcomes for quality of life, exercise performance, and dyspnea. A final sample of 5 articles was obtained from a total of 1693 studies. Data for final synthesis were grouped into 2 categories: components of unsupervised home-based pulmonary rehabilitation programs and maintenance strategies. An unsupervised home-based pulmonary rehabilitation program should consist of an educational component, an endurance training component, and a strength training component. When patients are transferred to the home environment, it is important to include more functional exercises specifically adapted to the patient’s condition, goals, and needs.