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“A proof of life” through transition from hospital to home after a stroke in a Portuguese setting: a multi-perspective, longitudinal qualitative study

2023-08Journal article Open access
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dc.contributor.authorMendes Pereira, Carla
dc.contributor.authorGreenwood, Nan
dc.contributor.authorJones, Fiona
dc.date.accessioned2023-08-25T11:07:47Z
dc.date.available2023-08-25T11:07:47Z
dc.date.issued2023-08
dc.description.abstractPurpose The impact of a stroke is particularly evident during the transition home, with reported unmet needs. However, little is known about post-stroke adaptation in Portugal. This study aimed to understand how Portuguese people with stroke and their informal carers/family adapt over time, and how health professionals support their adaptation. Methods A multi-perspective, longitudinal qualitative study was conducted using in-depth semi-structured interviews one and six months after inpatient discharge. A purposive sample of 24 participants (8 triads) participated. Thematic and narrative analysis strategies were used. Results Three themes were identified: Managing change over time; Balancing support over time; Changing priorities. These suggest the importance of time and gradual adjustment of health professionals’ approach throughout the rehabilitation process tailored to people with stroke’ and carers’ needs. Both valued positive thoughts and support from others to adjust life goals and find a balance between a mutual/bidirectional support and time for themselves. Conclusions Findings show that the manner in which changes after a stroke are approached may be positively transformed to provide strength. As a result of the deeper understanding gained from this study, health professionals may be better placed to acknowledge the needs of people with stroke and carers and find effective ways of supporting them.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationPereira, C.M., Greenwood, N. & Jones, F. (2023). “A proof of life” through transition from hospital to home after a stroke in a Portuguese setting: A multi-perspective, longitudinal qualitative study. International Journal of Qualitative Studies on Health and Well-being, 18 (1), https://doi.org/10.1080/17482631.2023.2238986pt_PT
dc.identifier.doihttps://doi.org/10.1080/17482631.2023.2238986pt_PT
dc.identifier.issn1748-2631
dc.identifier.urihttp://hdl.handle.net/10400.26/46191
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.relation.publisherversionhttps://www.tandfonline.com/doi/full/10.1080/17482631.2023.2238986pt_PT
dc.subjectStrokept_PT
dc.subjectCaregiverspt_PT
dc.subjectAdaptationpt_PT
dc.subjectHome transitionpt_PT
dc.subjectRehabilitationpt_PT
dc.title“A proof of life” through transition from hospital to home after a stroke in a Portuguese setting: a multi-perspective, longitudinal qualitative studypt_PT
dc.typejournal article
dspace.entity.typePublication
person.familyNameMendes Pereira
person.givenNameCarla
person.identifier.ciencia-idB81A-FC26-F608
person.identifier.orcid0000-0002-2899-9640
person.identifier.scopus-author-id56117960000
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication33eb694e-14a7-416b-89b4-f86b81ba34cd
relation.isAuthorOfPublication.latestForDiscovery33eb694e-14a7-416b-89b4-f86b81ba34cd

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