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Patient-Reported Outcomes and Experiences Assessment in Women with Breast Cancer:

2023Journal article Open access
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dc.contributor.authorCoelho, Anabela
dc.contributor.authorKendir, Candan
dc.contributor.authorBarrenho, Eliana
dc.contributor.authorKlazinga, Niek
dc.contributor.authorPaiva, Claudia
dc.contributor.authorSousa, Joaquim Abreu de
dc.contributor.authorGonçalves-Monteiro, Salomé
dc.contributor.authorRedondo, Patricia
dc.contributor.authorBastos, Ana
dc.contributor.authorNogueira, Armanda
dc.contributor.authorGuedes, F. B.
dc.contributor.authorCosta, Andreia
dc.contributor.authorGaspar, Tania
dc.date.accessioned2023-07-03T09:38:30Z
dc.date.available2023-07-03T09:38:30Z
dc.date.issued2023
dc.description.abstractIn 2020, female breast cancer was the most commonly diagnosed cancer worldwide, representing the type of cancer with the highest incidence among women and the second most common cause of cancer death among women in all OECD countries. The conventional measures addressing the burden of breast cancer by measuring mortality, incidence, and survival do not entirely reflect the quality of life and patients experience when receiving breast cancer care. The main objective of this study is to capture patient-reported outcomes and experiences in women with breast cancer in Portugal using methods developed for international benchmarking purposes, such as the OECD Patient-reported Indicators Surveys. The study included 378 women with breast cancer, with the age distribution being 19.8% aged 15 to 49 years and 80.2% aged 50 years and over. The data collection procedure and analysis followed the “OECD Breast Cancer Patient Reported Outcomes Working Group” protocol, allowing subsequent comparability with data from other OECD member countries. Most women were satisfied with the treatment outcome regarding the shape of their lumpectomy breast when wearing a bra (96.1%) and with the equal size of both breasts (78.3%). Findings on the WHO QOL-BREF showed that women manifest a lower score in well-being when compared with the general population or populations living with chronic diseases. This study shows the feasibility of implementing and using patient-reported metrics (PROM and PREM) in breast cancer services in Portugal. Measuring PROMs and PREMs from Portuguese women receiving breast cancer care provides insightful evidence into the quality and value of cancer care.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationCoelho, A.; Kendir, C.; Barrenho, E.; Klazinga, N.; Paiva, C.; Abreu de Sousa, J.; Gonçalves-Monteiro, S.; Redondo, P.; Bastos, A.; Nogueira, A.; et al. Patient-Reported Outcomes and Experiences Assessment in Women with Breast Cancer: Portuguese Case Study. Int. J. Environ. Res. Public Health 2023, 20, 2931. https:// doi.org/10.3390/ijerph20042931pt_PT
dc.identifier.doihttps://doi.org/10.3390/ijerph20042931pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.26/45345
dc.language.isoengpt_PT
dc.publisherMDPIpt_PT
dc.relation.publisherversionhttps://www.mdpi.com/1660-4601/20/4/2931pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectNeoplasias da mamapt_PT
dc.subjectSaúde públicapt_PT
dc.subjectSistema de saudept_PT
dc.titlePatient-Reported Outcomes and Experiences Assessment in Women with Breast Cancer:pt_PT
dc.title.alternativePortuguese Case Studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue4pt_PT
oaire.citation.startPage2931pt_PT
oaire.citation.titleInternational Journal of Environmental Research and Public Healthpt_PT
oaire.citation.volume20pt_PT
person.familyNameCoelho
person.familyNameKendir
person.familyNameGONÇALVES MONTEIRO
person.familyNameBotelho Guedes
person.familyNameCosta
person.familyNameGaspar
person.givenNameAnabela
person.givenNameCandan
person.givenNameANA SALOMÉ
person.givenNameFábio
person.givenNameAndreia
person.givenNameTania
person.identifierhttps://scholar.google.com/citations?user=GTUkFboAAAAJ&hl=pt-PT
person.identifier1154144
person.identifier.ciencia-id5619-2E40-73DE
person.identifier.ciencia-id301A-892E-CA0E
person.identifier.ciencia-id6F1A-412C-1E8D
person.identifier.ciencia-id071D-4FEB-416D
person.identifier.ciencia-id3811-05D5-7235
person.identifier.orcid0000-0002-1750-1229
person.identifier.orcid0000-0001-6877-4836
person.identifier.orcid0000-0002-2583-5624
person.identifier.orcid0000-0001-8291-1921
person.identifier.orcid0000-0002-2727-4402
person.identifier.orcid0000-0002-9616-0441
person.identifier.scopus-author-id55994390200
person.identifier.scopus-author-id57197787395
person.identifier.scopus-author-id57202310047
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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