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The extended palliative phase of dementia – An integrative literature review

2019Journal article Restricted access
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dc.contributor.authorHanson, Elizabeth
dc.contributor.authorHellström, Amanda
dc.contributor.authorSandvide, Åsa
dc.contributor.authorJackson, Graham A
dc.contributor.authorMacRae, Rhoda
dc.contributor.authorWaugh, Anna
dc.contributor.authorAbreu, Wilson
dc.contributor.authorTolson, Debbie
dc.date.accessioned2020-11-26T15:05:36Z
dc.date.available2020-11-26T15:05:36Z
dc.date.issued2019
dc.description.abstractThis article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, 'Dementia Palliare'.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationDementia 2019, Vol. 18(1) 108–134pt_PT
dc.identifier.doi10.1177/1471301216659797pt_PT
dc.identifier.issn1471-3012
dc.identifier.urihttp://hdl.handle.net/10400.26/34161
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherSAGE Publicationspt_PT
dc.relation.publisherversionhttps://journals.sagepub.com/doi/pdf/10.1177/1471301216659797pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt_PT
dc.subjectAdvance Care Planningpt_PT
dc.subjectCaregiverspt_PT
dc.subjectDementiapt_PT
dc.subjectHumanspt_PT
dc.subjectTerminal Carept_PT
dc.subjectPalliative Carept_PT
dc.titleThe extended palliative phase of dementia – An integrative literature reviewpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage134pt_PT
oaire.citation.issue1pt_PT
oaire.citation.startPage108pt_PT
oaire.citation.titleDementiapt_PT
oaire.citation.volume18pt_PT
person.familyNameAbreu
person.givenNameWilson
person.identifier.ciencia-id0313-F7A6-AE60
person.identifier.orcid0000-0002-0847-824X
person.identifier.scopus-author-id57191608626
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication2a9bfbb4-8930-4c6c-9ed5-21d856df4a1d
relation.isAuthorOfPublication.latestForDiscovery2a9bfbb4-8930-4c6c-9ed5-21d856df4a1d

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