Browsing by Author "Pires, Rita Alexandra"
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- Children with cancer nutrition at homePublication . Pires, Rita Alexandra; Reis Santos, Margarida; Pinto, CândidaThe children nutrition is one of the problems that parents have to manage at home, after treatment of an oncological disease. Nutritional commitment may prolong episodes of neutropenia and compromise the e+ectiveness of treatments. The goals of this study were: to identify the needs of parents/caregivers in the management of children/adolescents nutrition with cancer undergoing chemotherapy treatment, at home; to characterize parental strategies in the management of children's nutrition at home, after chemotherapy. A qualitative, exploratory, descriptive and cross-sectional study was developed with eleven parents of children with cancer, who underwent chemotherapy treatment, after returning home. Data were collected through a semi-structured interview and analyzed according to Bardin. From the analysis of content emerged the domain The Life at Home and the category Nutrition. Home Life for parents of the child with cancer presents several challenges, particularly in nutritional management, in the face of reduced food intake and the new rules imposed by the neutropenic diet. Thus, parents resort to several strategies to manage this problem: recourse to new practices in food confectionery; changes in the diet of the whole family; insistence/verbal pressure; distraction; reward after negotiation; supply a varied and nutritious diet; questioning/ accepting the food preference; organic food. Despite appealing to the multiplicity of strategies, the subjects of this study require the need for more structured support so that at home, they can respond to the challenges they face in their daily lives.
- Preparing the return home of the children with cancerPublication . Pires, Rita Alexandra; Reis Santos, Margarida; Pinto, CândidaChildren with oncologic disease, between treatments, if there are no complications, return home until the next treatment. Planning the discharge is essential to promote a continuity of cares at home. An adequate preparation for discharge leads to a better management of collateral e+ects and to a minor risk of rehospitalisation. The goals of this study were: to identify the preparation for discharge performed to the parents / caregivers of children / adolescents with cancer submitted to chemotherapy; to identify the strategies of preparation for discharge. A qualitative, exploratory, descriptive and transversal study was developed. After the return home, 11 parents of children with cancer submitted to chemotherapy treatment, participated in the study. Data was collected using a semi-structured interview and its treatment made using content analyses, based on Bardin. From the data analyses emerged the domain The Return Home that aggregates the category Preparation for Discharge and its subcategories: Oral Information, Written Information, Comprehensibility of the Information and Information Content. The return home is simultaneously a desired and feared moment. Parents and children return to their environment, but face di