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Espiritualidade, processo de meaning-making e crescimento pós-traumático em familiares de pacientes oncológicos
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Introdução: O diagnóstico de doença oncológica impacta não apenas o paciente, mas também toda a estrutura e a dinâmica familiar, dado ser uma experiência complexa e potencialmente traumática, com implicações nos diferentes domínios da vida. O estudo pretendeu investigar a relação entre a Espiritualidade, o Meaning-Making (MM) e o Crescimento Pós-Traumático (CPT), nos familiares de pacientes oncológicos em Portugal. Método: A amostra é composta por 111 familiares de pacientes oncológicos (M=45,84; DP=14,28), com idade igual ou superior a 18 anos, e a residir em Portugal. Através da plataforma Qualtrics, os participantes preencheram o Questionário Sociodemográfico e Clínico, o Questionário de Avaliação Funcional da Terapia da Doença Crónica – Versão do Bem-Estar Espiritual sem Doença (FACIT-Sp-NI), a Escala de Integração de Experiências de Vida Stressantes – Versão Reduzida (ISLES-SF), e o Inventário de Crescimento Pós-Traumático (PTGI). Resultados: Observou-se a ausência de correlação entre a Espiritualidade, o MM e o CPT, na presente amostra. Verificaram-se correlações estatisticamente significativas e positivas entre as subescalas Compreensibilidade (MM) e a Apreciação da Vida (CPT) (rs=0,221; p=0,020); entre a subescala Mudança Espiritual (CPT) e o MM total (rs=0,235; p=0,013); e entre as subescalas Mudança Espiritual (CPT) e o Posicionamento no Mundo (MM) (rs=0,280; p=0,003). O tempo desde o diagnóstico oncológico foi um preditor significativo do CPT e das suas dimensões. Conclusão: O estudo contribui para a compreensão da experiência dos familiares de pacientes oncológicos, no qual verificou-se a existência de CPT, bem como o contributo da espiritualidade, do MM e das características sociodemográficas e clínicas.
Introduction: The diagnosis of cancer impacts not only the patient, but also the entire family structure and dynamics, as it is a complex and potentially traumatic experience with implications in different areas of life. This study aimed to investigate the relationship between spirituality, meaning-making (MM), and post-traumatic growth (PTG) in family members of cancer patients in Portugal. Method: The sample consisted of 111 family members of cancer patients (M=45.84; SD=14.28), aged 18 years or older, residing in Portugal. Using the Qualtrics platform, participants completed the Sociodemographic and Clinical Questionnaire, the Functional Assessment of Chronic Illness Therapy – Spiritual Well-Being Without Illness Version (FACIT-Sp-NI), the Stressful Life Experiences Integration Scale – Short Form (ISLES-SF), and the Post-Traumatic Growth Inventory (PTGI). Results: No correlation was observed between Spirituality, MM, and PTG in the present sample. Statistically significant and positive correlations were found between Comprehensibility (MM) and Appreciation of Life (PTG) subscales (rs=0.221; p=0.020); between Spiritual Change (PTG) subscale and the total MM (rs=0.235; p=0.013); and between Spiritual Change (PTG) and Positioning in the World (MM) subscales (rs=0.280; p=0.003). The time since cancer diagnosis was a significant predictor of PTG and its dimensions. Conclusion: The study contributes to the understanding of the experience of family members of cancer patients, in which the existence of PTG was verified, as well as the contribution of spirituality, MM, and sociodemographic and clinical characteristics.
Introduction: The diagnosis of cancer impacts not only the patient, but also the entire family structure and dynamics, as it is a complex and potentially traumatic experience with implications in different areas of life. This study aimed to investigate the relationship between spirituality, meaning-making (MM), and post-traumatic growth (PTG) in family members of cancer patients in Portugal. Method: The sample consisted of 111 family members of cancer patients (M=45.84; SD=14.28), aged 18 years or older, residing in Portugal. Using the Qualtrics platform, participants completed the Sociodemographic and Clinical Questionnaire, the Functional Assessment of Chronic Illness Therapy – Spiritual Well-Being Without Illness Version (FACIT-Sp-NI), the Stressful Life Experiences Integration Scale – Short Form (ISLES-SF), and the Post-Traumatic Growth Inventory (PTGI). Results: No correlation was observed between Spirituality, MM, and PTG in the present sample. Statistically significant and positive correlations were found between Comprehensibility (MM) and Appreciation of Life (PTG) subscales (rs=0.221; p=0.020); between Spiritual Change (PTG) subscale and the total MM (rs=0.235; p=0.013); and between Spiritual Change (PTG) and Positioning in the World (MM) subscales (rs=0.280; p=0.003). The time since cancer diagnosis was a significant predictor of PTG and its dimensions. Conclusion: The study contributes to the understanding of the experience of family members of cancer patients, in which the existence of PTG was verified, as well as the contribution of spirituality, MM, and sociodemographic and clinical characteristics.
Descrição
Dissertação para obtenção do grau de Mestre no Instituto Universitário Egas Moniz
Palavras-chave
Crescimento pós-traumático Doença oncológica Espiritualidade Familiares Meaning-making